ME: What Hope? (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome CFS)

My personal reflection on ME, a severe complex neurological illness affecting millions of people around the world, and hope. I gave this talk at the Speakers of Felixstowe meeting last night.

See my other videos so far and subscribe to my channel http://www.youtube.com/getwellfromme . See http://www.getwellfromme.com , and follow me at http://facebook.com/getwellfromme and http://twitter.com/getwellfromme

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[SheWhoFeels]

Thank you! You have been a Voice for many. Like you I was very driven in my studies & future goals. My illness destroyed all that. I am so happy you are doing better now! You are a Ray of Light for many w/ severe protracted illness, suffering all the more in having a poorly understood underlying pathology. To those who say it's in our heads, I can only say: Look to history. Many diseases recognized today were once disregarded as psychosomatic. Keep fighting the good fight! <3

[GetWellFromME]

@SheWhoFeels Thank you, you're right, it's absolutely *not* all in our heads, or imagined, or even exaggerated. I do believe that emotional factors can be just a part of the trigger in some but not all cases, but that doesn't change the fact that there are real physiological things going wrong in our bodies which are serious, horrible and disabling. All the best to you :)

[anrive89]

Thank you Giles - another excellent speech to help people to understand.

[GetWellFromME]

@anrive89 Thank you :)

[shoshiplatypus]

Part 3 - ... sickness is something we may not be able to avoid, but we can choose to use it for good - to build character, patience and hope, to bring us closer to God as we depend on Him more, and to give us increased compassion for our fellow man in his suffering. Visit Joni Earekson Tada's website and read her articles about life as a quadriplegic for a mature Christian's approach to suffering!

Mayu the Lord bless you in your continued work on all our behalf.

Shoshi

[GetWellFromME]

@shoshiplatypus Thank you Shoshi, you're so right, most of the so-called church seems to have lost the ability of discernment, and it's easy to get swept into the teaching and famous "preachers" who seem to keep quoting the Bible but without the truth of what it means, or who say "peace, peace" when there is no peace... I guess most of us are more affected than we think, by existentialism, individualism, and materialism, hence the popularity of "kingdom now" ideas, -instead of what Jesus taught.

[love83forever]

This sounds like me...I also have hashimoto's

[GetWellFromME]

@ChronicFatigueSyn Thanks, I loved it there!! (And what use has the Engineering degree and all that study been to me?!!! :p ) I played violin, not regularly, but occasionally in a couple of orchestras and at church sometimes - now playing violin is something I haven't got back to at all... yet! ;)

[GetWellFromME]

@Aparajita1008 Thank you - I still sometimes find it too horrible to think about how ill I have been... and to think of millions of others suffering :(

[GetWellFromME]

@Afrikitty Thank you for your words. It is heartbreaking when Christians (and people who call themselves Christians) can say the most hurtful things. I do believe God is faithful, but people who expect promises of "perfect health" or "prosperity" in this world don't seem to understand the same gospel of the Bible that I see. Suffering is not "judgement" or "lack of faith", but we can trust God for what we have but don't see, and for what we don't have yet but is promised.

[GetWellFromME]

@TheLibra2767 Thank you, yes that sounds great! Let me know all about it when you're close to launching it!