MRI of knee to ankle, aggressive fibromatosis (Desmoid Tumor)

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Uploaded by on Dec 17, 2009

The video was suppose to say 2008, not to 2009! Here is an MRI of my leg from knee to ankle taken in September 2008. The first tumor was found near my ankle in 2007. A second tumor developed adjacent to it. In 2007, I underwent wide resection surgery. In 2008, the tumor reocurred and spread rapidly throughout my lower leg. I undwerwent wide resection surgery, again, in October 2008. I had to undergo radiation therapy in January 2009.

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  • I've been suffering from Fibromatosis for almost 6 years. Its attached to my brachial plexus. Affecting the nerves in my arm and spine. Restricting movement in my neck, arm and shoulder. The pain is the worst.

  • I also have aggressive fibromatosis. I have a large one behind my knee, in my calf, on my ankle, and one middle of the sole of my foot protruding through my toes. Yeah there is like a 100% reocurrance rate.

  • Remove the tumor or the leg? Or is it too late?

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