Cataplexy Attack 1

Cataplexy attack while watching Harry Hill

Category:

People & Blogs

Tags:

• cataplexy
• narcolepsy
• sleep
• medical
• disorder
• disbility

[KimIsMissing]

I have sleep parlysis, but is lucky enough to only have it upon waking and not in everyday life. So, is this like random attacks of sleep paralysis while being fully awake? how does this work?

[kizzy5772]

Hi KimIsMissing this is more a cataplectic attack, because I'm fully conscious, it's also a mild one compared to now. It is what happens if I miss a single dose of my medicine.

[kizzy5772]

dozydelilah - thanks for posting that. I may go on to Xyrem myself eventually. I'm glad it's made things so different for you. Are you doing it by injections at bedtime and then a few hours later? Have you had any problems with side effects? I'd be really interested to hear more.

[kizzy5772]

With venlafaxine to reduce the cataplexy threshold, and modafinil to help me stay awake, this doesn't tend to happen very often now. Before medication, though, life was VERY different...

[kizzy5772]

Having said that the two are different, being narcoleptic and having a low sleep latency means that is a cataplectic attack persists for a few minutes, it is possible to fall incompletely asleep and for the drop attack to morph into a sleep paralysis/hallucinating state.

[kizzy5772]

colemama - there's little difference to the observer, I agree. The two experiences are quite different from the "inside" though. In cataplexy I am totally awake, but paralysed, whereas the SP episodes posted by others on YouTube (I'll find the particular one I'm thinking of in a minute - scroll down) it's an incredibly unpleasant halfway house between being awake and fighting to wake properly, and being sucked back into a nightmarish dream/hallucinatory state.

[gyneman]

i'm the same way when I watch Bill O'Reilly.

[kittycakes2]

Oh sweetie, I used to fight the cataplectic seizures too. It's just easier to let it happen. Yes it sucks, but I found fighting it just made it even more frustrating.

[jamieindeed]

hey, 27 female. Diagnosed years ago with narcolepsy with cataplexy. Was prescribed xyrem and unable to use because at that point my husbad worked 3rd shift and i had to be coherent for my daughter in case something happened. I've only taken provigil, modafinil for the narcoplepsy. (even found 5 hour energy shota work when i was out of medication. I fight on a daily basis with the cataplexy and hope to one day get on something to counter ct the attacks. seeing as it works for some of you.

[KimIsMissing]

WOW, gosh I hope you never do this while driving!!

[dozydelilah]

its like watching myself...... i,m on xyrem now twice a night, and cut down my dose of anafrinal and provigil. what a difference. i never realised how bad i always felt until the xyrem showed mehow good i could be again. its given me a new leese of life.