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XMRV Retrovirus Research Appeal - Chronic Fatigue Syndrome CFS ME

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Uploaded by on Mar 11, 2010

An appeal for more research into XMRV a retrovirus thats been found in patients suffering from CFS/ME and Prostate cancer. We need our doctors/scientists to work together to find the answers! (Find a cure for ME/CFS (Myalgic Encephalomyelitis (M.E.), Chronic Fatigue Syndrome (CFS), and Post Viral Fatigue Syndrome)

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Uploader Comments (cfscue1)

  • Thanks for all your kind comments about my video.

    Dont give up hope. love Crafter Kate xxxxxx

  • Research into XMRV and MLVs continues, The NIH is working on a study testing blood of 150 ME/CFS patients.

  • The 1st International Workshop on XMRV, will be held on September 7-8 this year at the National Institutes of Health in Bethesda, Maryland, USA..

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All Comments (31)

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  • I don't think this has to be down to something called "XMRV" but this is a serious illness nonetheless.

  • Thank you to all those who are looking for a cure to help me and so many many others who are suffering years of CFS misery and pain..day in and day out. Please keep helping us.x

  • i'm suffering from this right now & not having health insurance or $ for a doctor makes it even worse. :-(((

  • Thank you so much for the beautiful and touching video. It brought tears to my eyes: tears of gratitude to those who have worked so hard to help us, as well as tears of grief for all the years and opportunities lost.

    When I was healthy, I always tried to be part of the solution instead of part of the problem. I hate begging for help, but that is what I am reduced to at this time. I cannot overstate my gratitude to the professionals who understand and care about us. Many thanks to all!

  • This is a wonderful video. So nice to see all the people that are working for this great cause as all of us with CFS sit on the edge of our seats and pray for a miracle. I would have loved to see Dr. Alison Bested here, but I realize she's not in the U.S.A. She does great work for us in Canada, lobbying, attending everything, ralling and constantly devoted to us here in Canada. Look her up on youtube as well. Way to go CFSCUE 1

  • When will Canadians be able to get this testing? Our Canadian doctors need to be educated on ME/CFS and the XMRV. This vital information needs to get to the new upcoming doctors in the universities so they know how to handle these patients. For those of us who have M.E. we are ever so grateful to those people involved with advancing research on ME/CFS. Thank you!

  • @cfscue1

    What is your idea that the 'outcome' of this workshop will be? ..or direction?

  • Thank you all! I hope I can get my life back... I'm only 28/M. I wonder if i have XMRV.

    by the way...there is something going to happen on september 8 2010? A congress or smoething about XMRV . Does anyone know where I could see this? I would really like to

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