Giovanna linda MINHA PRINCESINHA te amo(TAY-SACHS)

my name is Iolanda has 25 ans of age is married and my husband and I am consaguinios (prime of first degree) I have a son of 2 years who if always calls Giovanna it was m drinks pretty until the 6 months of life miha son was one drinks normal the days more had been passing and I perceived that the Giovanna more was atrazada than the others you drink said pediatra me that the Giovanna was a girl very gordinha therefore had more difficulties that the other children, more when it made 9 months of life perceived that she was losing the motoros movements and we take a doctor infantile neurologist it said that was normal that each child has its especifio time to develop itself more exactly thus we start to make sessions of neuropsico-motor fisioterapias more the days went passing and we do not viamos no improvement in our son already with one we nestle and 3 not firmavmais months the Giovanna the neck and I was very worried therefore I perceived that the Giovanna was very different of the children of its age took then it in a hospital very known here in Brazil that possue the best doctors neurologist of the country and the doctor after a oftalmologista examination evidenced that mine Giovanna son had a spot red cherry in its eyes, I wise person oque this did not mean found that mine son had something that it could be reverted, said me to the doctor that it would have a metabolic illness more did not say which to me was when we made blood tests and day 28 of March of 2008 was evidenced that my son to who I in such a way love I would have an illness called TAY-SACHS I to the wise person nothing this cursed illness more pesquizando in the Internet I perceive that the incurable illness ´pe the doctors had also said me that the espectativa of life of mine son does not pass of 5 years of age I is despaired looking to aid in tods the places here in Brazil quaze not if hears to speak of children that they have had TAY-SACHS does not have none institution or association that in I to them really help with some type of support I am devoid of aid. it would like to inform more to me regarding the tay-Sachs illness and oque I can make so that my son does not die helps is despaired would also like me to register in cadastre me in NTDSA CURETAY-SACHS ASSOSIAÇÃO as makes? please it answers, I am despaired help me to .obrigada Iolanda Abreu ....amo-te Giovanna minha princesinha amada presente maravilhoso q ganheimais que infelizmente foi diagnostica com essa terrivel doença que tirou de mim os sonhos e planos de uma vida feliz lute filha , lute contra essa terrivel doença

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[barbaracdf]

Nossa, que historia tao triste. Deus vai te dar vitoria. Lembre-se que o pai todo poderoso e o medico de todos os medicos. Nada pode contra uns dos seus pequeninos.

Estou gravida de 3 meses, e o meu marido e decedente de Judeu, entao estou esperando para o teste sair e comemorar a vitoria que estara negativa. Nao sabia que existia uma doenca tao maldita como esta. Mais tudo pode naquele que te fortalece. Bjus!!!

[cassiecancer501]

my baby sister has tay sachs and 1 of my twins died from it i am a 13 yr old girl and i have cancers and ibd and diabetes and alota stuff

[24791013]

obrigado por nos informar sobre esta doenca que por sinal nao conhecia estou orando por essas criancas que possue ests doenca o senhor nao vai desanparara tchau,Fabiana.

[1992peter]

My ame is Peter Johann, and I am 16 years old.

I am severly visually impared.

I am deermined to find a cure for Tay-Sachs disease.

Your son is very precious in the arms of God.

God loves him.

I will find a cure for your son.

I may have severe health issues, but THAT WILL NOT STOP ME FROM FINDING A CURE FOR TAY-SACHS DISEASE.

I WILL FIND A CURE FOR Tay-Sachs disease.

GOD BLESS

[anissafernanda]

Olá!!

Recebi sua mensagem e tentei respondê-la algumas vezes, mas todas as vezes deu erro.

Tem como você me mandar seu email? pra eu te mandar as informações que tenho sobre a doença de Tay-Sachs. Espero poder ajudar! =]

Bjinhos. =**