What is CCSVI - in simple terms

What is CCSVI? Why All The Controversy?

The Liberation Treatment is essentially an angioplasty procedure. Angioplasty has been performed on millions of people and is considered a safe treatment. Educated and informed MS patients who make an informed choice could receive this treatment and relief from MS that it has demonstrated, now, even as doctors and researchers are still learning about its correlation to MS symptoms.

But, instead of backing a patient's right to choose, when news of CCSVI and the Liberation Treatment made headlines in 2009 the national MS societies spoke out cautioning patients about having it performed. Some neurologists compared restoring essential blood flow for the brain to a snake venom cure and called it a hoax.

It took years for the "medical community" to accept that ulcers were caused by a bacterial infection and to treat patients accordingly. Whether it is because of set beliefs and training or from fear of lost funding and lost donations, the reason makes no difference. We don't have years to wait. Some of us are losing our mobility, our vision, our will to live. We as patients are uniting to demand the option for this treatment NOW.

Category:

Nonprofits & Activism

Tags:

• CCSVI
• Liberation treatment
• Paolo Zamboni
• The Reformed MS Society
• Reformed MS
• MS
• Multiple Sclerosis

[Superpanella]

I'm an italian patient of dr salvi and zamboni. I'm desperately, with pain, suffering, hedache for the nervs, and i havetwo babies, the most little have five monts and im incapable to care is. And....in italythis angioplasty IS UNLEGAL,,,,!

[MargaritaMonreal]

it is useless to fight against stupidity, better to avoid it

[utellmegirl331977]

Blocked or stenoses veins no matter what way you look at it MS or no MS is still a problem. Any person or Dr. would agree. So why not fix the problem because in fact thats what it is. And see what happens. Its like saying my faucet has a leak lets fix the water. No the problem is the faucet fix it. Stenoses of veins is a problem you can see it. Fix it. Its to simple to be that easy to fix MS. Thats the problem people always look for bigger things when simplest is usally best.

[TheWhoHe]

@notapplicable66 Oh dear.

[notapplicable66]

@TheWhoHe You are full of crap and are clearly work for the medical profession. You have failed miserably!! That is why so many people are going elsewhere for other methods. What is said about CCSVI makes a lot of sense. Nothing else even comes close. So moron. How can they tell us CCSVI does not cause MS if they have never studied or had a clinical trial? They no knowing about it!! Just like they know nothing about MS!!! Go to church and preach your crap there!!

[TheWhoHe]

@notapplicable66 " They can't cure it and they can't even tell us what causes it"...But they can tell us what does not cause it and evidence is now seriously questioning the 'CCSVI' hypothesis. Blind hope is of no use to any of us. If you search you will start to find as many testimonials from those unaffected or worsened by 'liberation' who are certainly thousands poorer. Charging for 'liberation' is far more unethical than the MS society's funding of controlled trials and pure research.sorry

[notapplicable66]

@TheWhoHe And it is absolutely criminal for the MS society who spends Billions of dollars every single year on "so called research" and making drugs. And what does all this money have to show for it after all this time? Next to nothing! They are no closer to solving MS today than they were from day one. They can't cure it and they can't even tell us what causes it. So to tell people not to have any hope or not to try another approach when everything has failed is criminal!

[TheWhoHe]

It is absolutely criminal to charge thousands for a procedure in its infancy (in relation to MS) with no real evidence of sustained efficacy.

[TheWhoHe]

"I'd strongly advise a more balanced perspective" was my original comment and this in the light of emerging current research which counters and significantly questions the 'CCSVI'/MS correlation. It is this properly conducted and rigorous research which is largely ignored by the e-media community and this wilful ignorance tends toward fuelling false hope at great expense to those most vulnerable. It is absolutely criminal to charge thousands for a procedure in its infancy with no real evidence

[dsmartwoman]

I do honor your right to make your own assessment about it and to be diligent in researching anything that is done to your body.

The scientific evidence is building up, the experiences are building up. And with or without correlation to MS I want my brain to have unrestricted blood flow and drainage.