My Shocking Story-Dying to Sleep-part 2

This Discovery documentary deals with a very rare and unusual prion disease called "Fatal Familial Insomnia" or FFI for short. FFI is a prion disease that targets the thalamus, of which of its many functions is the sleep regulator of the body. The prions form aggregates of amyloid plaques that destroy the neurons in this area.

Category:

Education

Tags:

• prions
• prion disease
• FFI
• Fatal Familial Insomnia
• Creuzfeldt-Jakob Disease
• CJD
• Mad Cow diesease

[christer12241984]

i have ffi

[WeatherMondacicci]

@christer12241984 Do you really? Not trying to discount your claim but are you only experiencing a chronic insomnia problem? The reason I ask this is because there are people who watch videos like this and relate it to the insomnia they are experiencing at that time.

If you are being real, I intrigued. Were you genetically tested? Did one of your parents die from it? Are you going through it now? If you don't want to respond here you may PM me about your experiences.

[Sprekitek]

People who have tried barbituates to sleep have gone into a coma, without even experiencing REM sleep. I am glad that I only have sleep apnoea, which is treated quite well with CPAP therapy - FFI has no successful treatment - and would be a torturous way to die. I know how prolonged insomnia feels, I am glad that I was able to fix the problem....

[WeatherMondacicci]

@Sprekitek Yes, experiencing insomnia is normal and does feel torturous. Not being able to sleep is probably one of the worst things to experience and that is why mankind has figured out how to use sleep deprivation as a form of torture to get something out of that individual or individuals. It is also used as a form of brainwashing to make people compliant.

[AmberHopePierce]

makes me want to go lay down an appreciate the good sleep i can get!

[BrightEyes10003]

@WeatherMondacicci I'm not hating or anything, but I just wanted to point out that insomnia is much more uncommon than people think it is. When people cannot sleep at night it usually has to do with nervousness, digestion, running thoughts, etc. But insomnia is actually a sleeping disorder. 'One has insomnia therefore cannot sleep', not 'one cannot sleep therefore has insomnia." i don't mean to be so technical, it's just that many people in my family have it bad (including me)

[melchan98]

i got distracted , hold on vsauce

[SongsofInnocence]

Couldn't they have given him euthenasia?

[mickeymouse12678]

@kentandken It doesn't work that way...

[mickeymouse12678]

@KgirlHasTheWits I never understood this either.

What's wrong with adoption? Why must children be blood-related?

Why people with horrible genetic diseases like this choose to procreate is beyond me.

[KgirlHasTheWits]

We can only hope this curse will some day leave them...the thing I don't completely understand is why the people who know the risk have to have kids naturally. They can still be parents if they adopt, and they wouldn't risk passing on the gene. I know I'm in no place to judge...it just seems like it could prevent lots of suffering.

[baselinez]

praise god i can sleep again thanks to this

[JUSTEPOUR18PIGES]

Wow. After watching at some "my shocking story" episodes i'm so ashamed that I complained about shitty things in the past

[kentandken]

WHY CANT THEY JUST PUT HIM ASLEEP OR SOMETHING... MAYBE PUNCH HIM?

[205georgie]

stop having babies!