Our Story: Living with and Managing Sickle Cell Disease (Nicholas H.)

In this video—presented by the National Heart, Lung, and Blood Institute, part of the National Institutes of Health—Nicholas H. and his mother, Bridget, talk about life with sickle cell disease. Nicholas was diagnosed with sickle cell disease soon after he was born. He suffered from hand-feet syndrome as a baby and had his gallbladder and spleen removed at age 5. Penicillin, hydroxyurea and other medicines have helped him and his family manage the illness and the severe pain crises that can result in hospitalization. Now 15 and an honor student in school, Nicholas enjoys "hanging out," listening to music, playing video games, wrestling and learning Brazilian jujitsu.

This video can also be viewed at http://www.nhlbi.nih.gov/health/health-topics/videos/living-with-and-managing...

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[Itachi4489]

It feels like he's talking about me... it's very similar.. the pain is like something making pressure inside whenever my heart beats and it's very painful.. and i've got used to going to hospital and getting admitted, I'm in danger of removing my Gallbladder but thank God i haven't removed it yet or my spleen.. and i have the pain now in my leg seriously x_x

[thesanityact]

i am a parent of a 17 yr. old with sickle-cell anemia. i hope your son will continue to be well. god bless him and your whole family. prayers help and keep the fluids going. i will pray for you!

[faithieboo100]

That kid goes to Childrens Memorial Hospital like me :)