CRPS/RSD Under Diagnosed!

It can take months or even years for the majority of CRPS/RSD patients to be diagnosed. Leaving them with intractable and unbearable pain.

Category:

Education

Tags:

• CRPS
• RSD
• reflex
• sympathetic
• Dystrophy
• complex
• regional
• pain
• syndrome
• chronic
• neurological
• health
• illness
• unexplained

[temt11]

i'm not sure if it fits my mother's issues...

if someone could help me out here...

she had a back surgery 3 years ago and since then has had multiple problems that seem related but unrelated at the same time. she's gained a ton of water weight from horrible edema and has terrible pain that seems to be spreading. they said she had cellulitus because her legs were turning red and getting hot...

no amount of pain meds seem to help...

does this sound like CRPS?

[melgus99]

Hi,

Could be, but she needs to see a pain medicine specialist, rheumatologist or neurologist for a diagnosis. See that she gets a referral ASAP incase it is CRPS.

[dancerfromtheheart12]

hey guys. im 12 and i have crps. i was diagnosed when i was 10. it started out in my foot then whent to lucile pacard childrens hospital at stanford. a special thanks to my doctor (dr krane) for getting through the pain and i was going without pain for a couple months. but... it hit my leg again. i went back up there and it took 2 weeks then i was out

[melgus99]

Hi there,

I am so sorry to hear of your ordeal with CRPS. Gosh I was told I was too young to be suffering this much pain when I was 24 years old. I can only imagine what it is like to have this pain from the age of 10! I really hope you can beat this thing and get some of your childhood and your pending teenage years back! take care, Mel x

[tgafa92]

hi there,

i myself at age 18 have been diagnosed with crps and share the same story. it took too long to get treatment and answers causing the condition to become permanant. my case however id on in a billion, starting in my left arm, spreading through to the other, then my legs, soon followed by my face now its building up in my spine. thoughts are with you.

[RNDakaCRPSakaRSD]

My sister has RND. Anyways can you go check out my channel?(:

[starkiss0708]

My mom has RSD, she has had it since I was eight years old and I am to turn 21 in a few months. Its really annoys me how many doctors don't know or understand what RSD is. I hate having to go with her to the hospital because of the pain is so bad and the doctors tell her it is all in her head. When I ask them if they know what RSD is the say they have heard of it but no and I explain it to them. Doctors should not say they can't help when they don't know what they are doing. They need to learn.

[johnnylightning11889]

im 21 just got diagnosed, my pcp literally looked at me and blatantly ignored my symptoms, he said "it will burn out, you'll be okay, just take ibprofen." i wanted to smack him, dont take n o for an answer. dont let them make you sufer, i live north of dallas, ya'll wanna set up an awareness rally? lets do it and prevent other people from suffering like this thank god i only stage 2.

[clinge01]

@JOSYMOL I am currently going through the same process. soon i will be on the streets if they are successfull in cutting me off. I saw the Gov. Dr. yesturday, who was a total henchman. Can you give any advise. Good spee.

[whirleygal]

Completely frustrating to read even more stories of symptoms being ignored & being viewed as a head case. I was diagnosed in 07 w/ RSD. Prior to my seeking a specialist I spent months trying to figure out why I was in so much pain from just a sprained ankle. Several doctors ignored my tears. Stage 3. Right lower limb & foot real bad, left foot. both hands now. Gentle Hugs to all.

[Naanad]

I guess you could say it felt right to say it. So maybe we'll find out later. *winks* Nope don't know you but I'm wishing you the best.

[melgus99]

Hi Naanad,

Thank you. Do I know you? Did you know I used to be a runner? or Divine intervention? Had a lot of that lately! Would most certainly run a lap of honour for you!! Mel