To Tysabri or not to Tysabri?

whilst awaiting the results of my JC Virus test I am pondering the options.......

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• MS
• Multiple
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• Avonex
• Betaseron
• Copaxone
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[kenzboard]

I've had the same mental conflict: do I choose 20-40 years on a slow downward spiral...or do I choose 2-40 years recklessly feeling 'better' and while simultaneously trying to kid myself that it could all go wrong and be over with in less then 3 months?

[SOMUCHMORETHANMS]

@kenzboard I couldn't have said it better myself! There has to be something else out there that doesn't have death as a side effect.... Even though I am JC neg I am still too scared to make the call.... Hope you are doing well...... Cheryl!

[MrMDM2007]

I went through that type of crap for 2 years with shots side effects, feeling terrible for 2 days a week...basically it took my life away for 2 years.

I've been on Ty for 2 years, but think about it, the risk is less to get PML that probably walking accross the street in a big city,what is life if you feel like crap all the time?

I do have the JC Virus antibody, but I feel like I got my life back,so to me I'm not changing. I truly feel great and I've not had a relapse in 2 years.

Dave

[SOMUCHMORETHANMS]

@MrMDM2007 I know what you mean about the risk of PML it is still so scary but I am sure I will get sick of feeling crap and cave and start the Tysabri. I am glad it is working well for you Dave this disease awful and I am so happy you are feeling good!!!!!!! Thanks for the comment!

[hughesad12]

this video is awesome. Thanks for making it. Definitely made me smile/laugh. I love your attitude about having MS and all the new treatments. Just went to my neurologist today and am trying to decide whether to switch off my double-dose of Betaseron to either Tysabri or Gilenya. Or perhaps just stay on Betaseron and get monthly steroid infusions and check in again in 6 months since I'm really feeling pretty great (just some numbness in my finger tips) and haven't really had any problems. thanks!

[SOMUCHMORETHANMS]

@hughesad12 double dose OMG how do you function that stuff made me feel like garbage!! I am so happy you are feeling so great!! If it's working keep it up!! Take care!! Thanks for the comment!!

[Bigbully0110]

I can't believe you said pooping your pants... It's more embarrassing than anything else. I've done it and felt totally helpless, I would not wish MS on my worst enemy... Not that I have any enemies, but that is how I feel about it.

[adr3naline23]

hay nice video especially the ending with the vampire voice :) <3 newly diagnosed myself, im just having some optic neuritis so far which is diff but manageble, hope your feeling ok :) ill be taking copaxone, sounds like what everybody takes at first, but there will be better days as tupac says!!!

[aszalos1]

hi there i had the rebif for 2 years and had the same side efects now im on tysabri for 1 year now and no relaps for this year :D and no side efects

[SOMUCHMORETHANMS]

@Theopticneuritis So sorry to hear you are going down hill!! feel better soon!

[SOMUCHMORETHANMS]

@ThePennygirl Thanks Susan we can't give in for even a second or this disease will swallow us up!! We need to stick together!! I hope you are doing well!!