Amy, Raising Lupus Awareness

I do not own this music PLUMB; song Sleep..i have SLE systemic lupus, lupus nephritis, strokes, TIA's, raynauds and vascultis..

Category:

Nonprofits & Activism

Tags:

• sle
• lupus
• nephritis
• cellcept
• prednisone
• gangrene
• raynauds
• OneTrueMedia

[chawkk1]

Absolutely LOVE IT. I'm nineteen and have stage 4 lupus nephritis.. And had to get a special order in my pharmacy for Cellcept so I should be starting in about a week. This was so beautiful and the music was perfect. I cried a bit. Thank you so much for sharing! :):) Glad you're feeling well!

[AmyTx]

@chawkk1 thank you so very much yea im stage 3 active and stage 5 inactive...good luck to you

[AmyTx]

dooners sorry your not doing good cellcept has really worked for me. im glad you like the video..alot of people dont understand..im photosensitive too makes me break out everytime

[AmyTx]

thanks so much feel free to post it on facebook

[AmyTx]

aww thanks lupie

[AmyTx]

thanks yardman

[SashaZahra2009]

@MsBunnyLove4Ever

Thats sounds awfull :( I'm sorry for you to go through all that! I can't believe the health system in the US. In Europe we have some great systems I believe. I live in Holland and we pay for ensurens ofcourse, but the costst arent as high n we get the best treatment! USA really sucks at that. My aunt had a stroke and she had to get a lone so she could get treated..I have SLE for 1 year, n I get checked every 6-12weeks and I get meds without extra costs

I wish you the best!

[SashaZahra2009]

Thank you for this wonderful video, it really touched me! I hope things turn out ok and you keep feeling better. I am 21 years old and have SLE for 1 year now, stage 1-2 and felt very bad in the beginning. Kidneys had lost 40% of their function, it took a few months and they healed thank God. I'm using prednizone, plaquenil and meds for the bloodpressure. Somehow its good to know I'm not alone :)

I hope the best for you, specially for your beautiful kids.

[TheTerribabi]

Thank you for sharing, having lupus leaves you feeling alone, misunderstood, doubted. I am so tired this disease. This our battle we have to fight for a cure. Educate each other other on methods to heal and prevent the damages that Lupus can cause. Stay strong and continue to educate others and the world.

[MegaJosephine88]

Thank you for your wonderful video -great job- I am 50, with Systemic - I take about 40 pills a day - half are for seizures. I want to look into this cellcept, I don't know it and does it work well for most of you. This year I have had good kidney results-amen! My daughter is what makes me push myself - she got diagnosed last spring - now it's our battle = GOOD LUCK TO YOU ALL

[MsBunnyLove4Ever]

Great Video. I'm a lupie too. About 11yrs now. I haven't had insurance for many yrs, b/c my job let me go, they said my medical bills were bankrupting the insurance group. I lost my home, job, everything b/c of lupus. Even my kids who are now grown hate me, b/c my lupus took everything they had too, their home, etc.I became sick soon after a Hepatitis b Vaccine, IDK if U have seen gov't admitted they knew it could cause Lupus. Utube won't let me link court papers. I hope U all heal. Get better.

[kacklebird2]

Dear Amy, I have watched some of your videos and your story just breaks my heart. I too have Lupus and wish that others could truly understand the impact this disease has on so many of us. I wish you could be our voice for those who suffer with Lupus as you put together some awesome and educational videos. Have you ever thought of contacting CNN or one of the major tv channels to share your story and how Lupus can affect an individual. I think you're awesome and I pray that you're doing better.

[mikedavis5671]

Thank you for the video. I was just told last month that I have lupus.I have been on many meds. I have to start taking cellcept this month. i really hope it helps. I am a mother of 5 beautiful kids and 1 wonderful husband. Your story gives me hope thank you....glenda