Next Step: Contact your State Medical Board

Given the fact that the FDA reversed its position and is now giving the Big OK for midodrine production, we are in a position to advocate for more change.

#1. Call your State Medical Board & ask that additional Continuing Medical Education (CME) be required of all doctors, to 'update' them on a topic: "Misdiagnosis and Invisible Diseases". They did it here in CA for 'Pain Management", because there were so many misconceptions about pain management.

I have contacted my mentor Ronald G. Pearl, MD, PhD to help in this regard. What good does it do for us to have our midodrine now? It is incredible that we have a Voice, and we need to continue to speak.

What about all the people who need midodrine, but who do not yet have a diagnosis of dysautonomia? That's probably thousands and thousands of people that we can still help.

Contact your State Medical Board and/or California Medical Board also, to let them hear us.

10-10-2010: TheInvisible Diseases Advocate has a meeting in Colorado. I'd like to attend, even if I have to sit in my wheelchair. If we get together a table of 10 people, we can 'promote' dysautonomia at our very own table.

We will know that we have 'made it' when every doctor in training, on National Medical Board Examinations, has to answer the following question:

Which of the following is in the differential diagnosis of syncope?

1. Brain Tumor
2. Aortic Stenosis
3. Dehydration
4. Dysautonomia

Please pick up the phone or mail/email your State Medical Board. We have a voice now......let's use it for those of us who don't even know we need midodrine, because doctors never heard of dysautonomia, yes?

Category:

Nonprofits & Activism

Tags:

• FDA
• midodrine
• dysautonomia
• potsies
• medical
• board
• examination
• advocacy
• advocate
• invisible
• disease
• national
• exams

[InvisibleDisability]

We hope you can attend the 10-10-10 Honor Awards Banquet too! We would be honored to meet you and your Dysautonomia friends!

[DysautonomiaMD]

@InvisibleDisability : thank you for all your support on the 'midodrine scare' of last week. Please note my latest video and be in prayer with us. We are waiting for God to help us, and He is our strength. God willing, I will do everything I can to be there. Keeping the family in mind, as they are my joy...tx for all!

Highest Personal Regards,

Dr. Margaret

[MrOutcry]

Thanks for all the wonderful information! I am so glad to know that you and everyone in our youtube Dysautonomia groups are willing to fight for what's right. I tried to contact my medical board but had a lot of trouble filing a correct complaint and also getting the right number.. pretty much spent some time getting the run around.. .... hmmm maybe i'll try after the holiday..

[DysautonomiaMD]

@MrOutcry Just thinking of you. I was wondering if I can frame your PM and put it up on my wall. It is the nicest letter I've ever received. You keep up the faith, ok?

Highest Personal Regards,

Dr. Margaret

[FallaciesDetective]

great! :0)

[DysautonomiaMD]

@FallaciesDetective : Amen!

[DysautonomiaMD]

@MrOutcry : Ask for the Executive Office....they have the power to require all MDs to have Continuing Medical Education for a new subject,

"Misdiagnosed and Invisible Illnesses"

Tuesday is the day, good sir! Tuesday is the day! LoLv

[DysautonomiaMD]

@jtls8 : we could make all the phone calls on Tuesday, after Labor Day vacation. Hmmmm......LoLv & see you soon!

[DysautonomiaMD]

@jtls8 : we could make all the phone calls on Tuesday, after Labor Day vacation. Hmmmm......LoLv & see you at 1200 noon or so! :-).