My personal struggles with TS
Uploader Comments (CherryBlossomGirl85)
All Comments (12)
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Hey cherryblossomgirl , I was wondering if you know how well turner girls heal after breaking a bone ???? I recently broke my ankle and I searched everywhere I could on the Internet and found nothing :/ if could reply back thanks so much
-adi8a08
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Thankyou for making this video, I'm 15 and the biggest struggle I have with turner syndrome is the fact that I cant have children on my own but your videos have helped me overcome that litlle by little. So, thankyou. :)
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I'm not good at video blogging, BUT, I AM on facebook and I also have a blog ... I haven't talked much about Turners Syndrome on either of these, because I don't let my condition rule my life, BUT, if any of you would like to contact me and ask questions - feel free. Or if any of you would like me to dedicate some blog posts to talking about my TS - I'd be happy to help any of you. Just drop me a line. Don't hesitate. If you'd like links to my blog or facebook, please message me. xx
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I suppose I'm just here to offer my support and guidance to any of you Turner girls who have just been diagnosed or who are younger than me and are struggling to come to terms with it. I have a good few of years dealing with this condition and would love to offer my support and experience. You're not alone, and you CAN live normal lives! Remember that my lovlies :)
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I'd say the scary things I have encountered about Turners is the infertility and the heart condition associated with it. I take medicine to ensure I don't suffer hypertension (high blood pressure) which has meant that thus far my heart condition hasn't been too much of an issue, and currently with me only being 20 years old, my infertility hasn't affected me yet either. But I do worry about what the future may bring....
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I was diagnosed young and my Turners has been treated very well. I took the growth hormone genotropin, so I stand at a respectable 4'11 (I like being short anyway, so being little has never bothered me. And I'm from a small family, my Mum is only 5'0... so it isn't like I stand out as 'abnormal') and I also took estrogen tablets, which helped me develop and go through puberty normally.
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I was bullied in High School, but I had fantastic friends to support me so I got through it. I am currently at University and have a wonderful boyfriend of one year, so I think it's safe to say I'm living a normal life and I really want to reassure other Turners girls that they too can live perfectly happy, healthy, normal lives. Turners Syndrome is nothing to be frightened of.
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Hello girls, my name is Sarah. I'm 20 years old and I have what's called Mosaic Turners Syndrome. Mosaic just means that not ALL of my X chromosomes are missing, only some of them are and others are just bent or mis-shaped etc. Thus my set of chromosomes looks a little bit like a Mosaic, hence the name for the type of Turners syndrome I have. Mosaic Turners Syndrome is a milder form of Turners Syndrome.
my big struggle was with the children thing i know i have options but its sill a hard thing to deal with and i am young so that make it headed
amy63699 8 months ago
@amy63699 Being 25 and loving children...sometimes it breaks my heart...yet makes me so amazed how this has opened my eyes to all the sweet little ones I could love and adopt who would be alone without a good family....Just have to snag the Mr. Right to be that awesome dad.
CherryBlossomGirl85 8 months ago
Thanks for sharing it really helped!!
puggzley6 9 months ago
@puggzley6
Thanks...It was hard to make this vid. But, if it helped, I'm glad I did.
CherryBlossomGirl85 9 months ago