Hi my name is Jamie Rose and I have made this video to spread the word about Interstititial Cystitis, which is a painfully chronic bladder condition that I suffer with along with many other people. Currently there is no cure for this condition and not very many people have heard about this disease nor know what it is. My goal is to spread awareness about this disease. So take a few minutes out of your day and watch. A message from IC Hope & Healing ©
Thank you for this video. It is beautiful. My heart goes out to everyone who is suffering from this condition . I have had it for over a year now, and I have to say it has been the hardest thing I have ever done in my life. no one can see it, or understand it, except for other IC sufferers. We must stick together and keep praying for a cure.
featherbullet83 1 week ago
Thank you Jamie Rose for encouraging others who suffer with IC. I was diagnosed with IC in June of 1997 and it is a torturous disease. I want to share what happened to me in hopes that you will be touched also. I was in so much pain and I was praying desperately for God to heal me. One Sunday in August of '97 I was in church and I raised my hand during worship. I had the sensation of oil being poured over me. From that point on I have not had one more symptom. I pray the same for you.
bwrobin2 4 months ago
Amazing video Thank you so much for sharing!!!!
NeverJudgeMe 11 months ago
Thanks for including me Jamie!
bredet 11 months ago
What a fantastic video! The tears kept coming as I read and watched and realize that I am not alone with this terrible disease. My IC seems to be a little under control these days with having frenquent 'uracyst' instillations It'd be nice too though if my urologist took my pain and disease seriously... :(
sharloom 11 months ago
Thank you so much! There are way too many of us and more being diagnosed each day!!
rgrevenstuk1 1 year ago
Thank you Jamie Rose...I will try to stop crying now.
acegijkl 1 year ago
37 years for me. I just started Aloe Vera capsules three days ago and am back to normal once ever half hour. Flare was 8 months long once every 3 minutes. :(
I never thought how grateful I would be for 30 min. urgency.
georgegrasser 1 year ago
Very well put.
k2reeves 2 years ago
Jaimie Rose,
You could edit film. You're incredibly talented getting the message across w/o being "preachy" like other videos I've seen. This is truly touching. All the beautiful young, formerly vibrant women (mostly) and men who contend w/this every day......I wish us all peace from this syndrome and pray that one day God will give the researchers the knowledge they need to kill this beast.
justice4J 2 years ago