My Life with Myasthenia Gravis 01-07-10
Loading...
Loading...
8:34
My Life with MG 01-09-10 part 1by Thekarinski691,003 views- 3:16
faces of myasthenia gravis - a bad dayby pajejoci14,270 views
- 9:41
My Thymectomy Part 2by Thekarinski691,943 views
- 1:22
My Life with Myasthenia Gravis 01/06/10by Thekarinski691,816 views
- 3:56
My Life with Myasthenia Gravisby Thekarinski6931,805 views
- 3:32
Gabriela Sabatini a los 40by CanchallenaTV32,788 views
- 2:18
My Thymectomy 01-17-10by Thekarinski694,070 views
- 10:18
Me and Myasthenia Gravisby mikeyWRX2,892 views
- 0:18
Gabriela Sabatini - Spot I Miastenia Gravisby fundmg12,499 views
- 3:31
2010-07-18 Effects of Mestinon on My Myasthenia Gravisby drbunn3,214 views
- 2:13
Myasthenia Gravis - What to look forby drmdk3,262 views
- 4:17
Myasthenia Gravis- Emotionsby littlepoptart797,206 views
- 9:49
Clinical Research and Treatment of Myasthenia Gravisby MGFI2,483 views
- 0:38
New Test to Diagnose Myasthenia Gravisby ClevelandClinic2,286 views
- 10:01
Update 12-29-10by Thekarinski691,019 views
- 4:11
Learning to Shine Despite My Disabilityby RealWomenRealAdvice74,728 views
- 4:02
Thymectomy and Myasthenia Gravis: A Clinical Challenge (MGTX)by slucru11,424 views
- 2:14
tongue ulcer - spots on tongue - white tongue coatingby kuremoroti823,745 views
- 4:55
myastheniaby eyerounds27,515 views
I was diagnosed with MG in 2001 when I was 20. I just wanted to say that I can really relate to your story. I had the thymectomy, rode the mestinon roller-coaster, and took prednisone for a year. Now, I am forming a website for MG info. to help people not have to feel as alone as I was.
These videos give the most accurate description of what living with MG is like. I just wanted to say thank you for sharing that and for having the courage to allow people benefit from your struggle.
rockmijk 10 months ago
Knowing what you will be doing allows you to know when to take the medicine, giving it enough time to start working. I now take one or two pills with me whever I go just in case we have too much or get tied down somewhere. I saw the exercise video and I'm proud of you that your getting out there, however weird that sounds. Exercise hasn't always been that important to me so it's what I am struggling with. Any tips you have would be appreciated.
btyler4606 1 year ago
I should have watched this video earlier because it really showcases the symptoms more than your other videos. I really relate to how your voice goes away and you feel trouble swallowing, especially with medication. I have found that taken medication and thn eating helps alot because 1. the food will push it down into the stomach (hopefully) and 2. The food will help digestion the medicine faster. The trick with this syndrome/disorder is knowing what you are going to be doing in the near future.
btyler4606 1 year ago
I'm going thru the same thing juust different symptoms....I swear I don't feel normal any
more, mainly abnormal. But mestinon timespan works but doesn't cure.
NICKEYBLACK35 1 year ago
...hope you're doing ok---thanks for the education on myasthenia gravis!! :)
eehosini 1 year ago