Being legally blind (Ocular Albinism)

Just a random video in result of me being bored:)
comment, rate, subscribe.
xoxox
Casey

Category:

Entertainment

Tags:

• legally
• blind
• ocular
• albinism
• nystagmus
• eyes
• albino
• seeing
• visually
• impared

[dabeshu]

Sorry but you sound dumb as hell

[KCfan7989]

@dabeshu Um...ok. Could you give me reason as to why I sound "Dumb as hell"? Thanks.

[jessandmarkgarrison]

Casey, You might actually have a form OCA and not Ocular Albinism. It is very uncommon for a female to have OA since it's generally x-linked. It was only a few years ago that through doing research on my own that I found that I now believe that I have either OCA1B or OCA2. I was a lot you when I was a teenager By the way my name is Jessica

[KCfan7989]

@jessandmarkgarrison Hi! Thanks for the comment. If you check out my newest video, you'll actually see that I has HPS type of albinism (hernansky pudlak syndrome) nice to meet you, Jessica!

[jayzg60]

hey what about like a retina transplants is that a real surgury or did i just see tht in the movie "THE EYE"

[KCfan7989]

@jayzg60 I think it can be done, but the risk of going totally blind is much too great, and i would never want to lose the vision i already have.

[TheDarkAngelGothGirl]

Hey Casey, I'm in your theater class. I never would have known! I noticed that you hold your books really close to your face and your nystagmus, but it doesn't affect your great personality. (btw, you sing really well.)

[LAshlieH]

I have albinism too. I can totally relate to this video. It's nice to hear your story. I'm glad you shared this.

-Lauren

[poshyKeen123]

The light now being able to stabilize on the fovea.

[poshyKeen123]

I'm legally blind too.

I'm 23 and can't drive.

I was born 3 months premature and had detaching underdeveloped retinas. I had to have cryogenic surgery as a newborn.

I have congenital nystsgmus.

Until my surgery to move my eyes, I use to have to hold my head up to see properly.

I'm having horizontal tenotomy next month which means they're going to cuts my horizontal muscles and sew them back in the same spot to slow down the shaking.

FYI: nystsgmus makes you sensitive to sunlight too due to t

[tasha32231803]

Hey I don't have it but I hang with. Three people who do. Im happy that u post this video cause I no a little more of what not to do.

[dabeshu]

@KCfan7989 Sorry

[jakeblunsford]

Wow, resembles my symptoms greatly! It's always good to know I'm not the only one out there!

[andreaxx6]

Hey Casey, I have ocular albinism, I'm 18 and for years and years, I was told I wouldn't be able to drive, but my vision somehow actually improved over the years a bit, so i'm able to drive with restrictions, and I'm honestly just barely able to, like it's right around the cut-off for my state. So, I'm lucky in that aspect. I have nystagmus, strabismus, and photophobia. Your video made me feel way less alone about having it (never known others with it) so thank you very much :) Take care, Andrea

[rboesen1970]

You have a great atitude. Keep it up. As someone with OA and have done well with life (my opinion). Don't ever change.

[mashallxoxo]

Haha Hey!! I love you. AND I was in choir all of high school - I love singing!! Also I'm pretty sure we're like the same age. OhmyGosh I can't even put into words how alike we are. Crazy stuff. I would love to get to know you:) - I mean that in the most non-creapiest way ever