22q Central Tour 1

22q Central is a worldwide community directory, promoting awareness and education regarding a common, yet many times overlooked, genetic disorder known as 22q11.2 Deletion Disorder, DiGeorge Syndrome, VCFS (velo-cardio-facial syndrome) and others. Parents, caregivers, and extended family of those with VCFS face difficult challenges that require practical solutions, and that is exactly what you'll find here. We hope that you'll join the many voices of experience that speak here, and that you'll share in reaching out to others with your own unique perspective. We offer you a welcoming, safe and comfortable place to interact with other parents and professionals, and an opportunity to learn, share and get involved. We want to become "A friend of your family."

Category:

Nonprofits & Activism

Tags:

• 22q
• 22q11
• 22q11.2
• 22q11.2 Deletion Disorder
• velo-cardio-facial syndrome
• VCFS
• DiGeorge Syndrome
• Sherry Baker Gomez

[JeepBunny]

Thank-you for the site and this video. I really apreciate the information and the support I can get should I feel the need to reach out. This is a very hard syndrome to deal with as a parent because of lack of research, knowledgable doctors in Canada and doctors with open minds. My daughter was diagnosed 2 years ago and is now 15 so she has this plus regular teenage stuff. I am so happy I watched this video.