Legg Calve Perthes...One Boy's Journey, Tanner

Tanner and his journey with Legg Calve Perthes Disease, thus far. Please if you are visiting this page, make a donation to the SAVE-A-LIMB RIDE..http://savealimbride.kintera.org/faf/donorReg/donorPledge.asp?ievent=47795­2&lis=1&kntae477952=C8DB122CB18B4BC8B7F5A52AD6D57899&supId=328382565

Category:

People & Blogs

Tags:

• Legg Calve Perthes Disease
• Hip Disorder
• Femoral Head
• Perthes
• Children
• Pain
• Illness
• Rare Disease

[alicehay]

Just wanted to say thank you all for your comments on my video and on Tanner. We appreciate the prayers and concern.

As of May of 2009, Tanner has been off of crutches and the use of the chair. He has some pain and walks with a limp. He does have regrowth (some) . It takes a long time. As some of you are quite aware of. Please know we pray for everyone perthes has touched each night. Thanks and I hope to update this video soon. Tanner's Mom...Alice

[kidsanghorses44]

@carrottmom Be strong, maybe join a support group it helped me the first couple of years after we found out. It's been 8 close to 9 years now. God's strength and love be with you.

[carrottmom]

Thank you for this. It will help me know what to expect. My 3 year old son has just been diagnosed. It complained of pain in his leg for quite a while but it only showed up when he was tired so we overlooked it. Now he is limping, which led to the diagnosis.

[davemustainee2]

yes I had the treatment

[alicehay]

@davemustainee2 would like to know why you say this...apparently you have problems with your Perthes or did not receive the treatment you needed. I am sorry you feel this way.

[apretli]

I hope Tanner is progressing well. I would just like to tell you that I had Perthes as a child in England during the 1950's. I was five years old when diagnosed and the treatment then was complete bed rest with full leg cast for TWO years! So I was in hospital all that time and came out with a brace for six months, then crutches....however at the end of that time I was okay and now at age 65 I still don't have any problems with my hips. Treatment has come a long way since then! Good luck Tanner

[nathapardo]

EXCELLENT VIDEO. BEST WISHES FOR TANNER ;)

[babaka]

I've had perthes and i know with what you will engage and i wish you the best of luck and everything goes smooth and fine .

Petyr from Bulgaria

[tonnotonnotonno]

Hi Tanner.

so happy to see you're finally well. Thanks to your parents for all they've done.

I hope to come back in the future and say the same for my little Stefano. 3 y and half. Perthes.

It'll be a long travel. Just begun. But we'll succeed. For sure!

marco and Stefano from Italy

[laplata507]

Keep up the good work with the video. I am now going to school to be an Pa. I would like to work in an orto office to help kinds with perthes. I had to deal with it and so many others need help. Thanks