Fibromyalgia- my fun blog- - Hey, I can blow dry my hair now!

Hello- I don't sell anything. I video blog about fibromyalgia.

I'm on the Guaifenesin Protocol, a controversial treatment for reversing the symptoms of fibromyalgia, developed ten years ago by R. Paul St. Amand, M.D. I don't know how many people worldwide are following the protocol, as more and more doctors are recommending it, but we have 2,000 people in our online support group, the Guai Group. Some of them have been on Guai since the beginning, ten years. They have some amazing stories to tell.

My life has changed a lot, too, since four years ago, when I was first diagnosed with fibromyalgia, and started researching treatment alternatives.

There was the traditional "drug the hell out of it" approach.

And, then there were "alternative" approaches. I tried "herbal" everything.

I tried acupuncture and chiropractic and massage.

I tried just about everything.

I've stuck with the Guai Protocol because it works for me. Even my bad days now are better than the good days I used to have before.

I network with others who have fibromyalgia, sharing information.

I also keep a written blog about fibromyalgia on my family website, www.surfercouple.com. (My husband and I enjoy surfing. We're longboarders.)

We used to live right on the beach in Morro Bay, but had to move because of me.

The cold, damp climate and fog were aggravating my fibromyalgia. I cried when we left the ocean behind.

But, now that my son has been diagnosed, I realize it was the best move for us as a family.

We're 12 miles from the ocean now, (a 40 minute drive, though, since we have to cross the mountains.)

But, the climate change has made a world of difference. Without the cold, damp fog and chill, I feel a lot better.

I think my son's life would have been a lot different, too, if we had stayed in Morro Bay.

Leaving was the right thing to do, hard as it was.

If you'd like to learn more about the Guai Protocol, you can easily find info by Googling it, or using Wikipedia. There's tons of info on the web, and its like brussels sprouts-- folks are either fans or critics. There's seems to be no in-between. (For the record, I like brussels sprouts.) I keep some FAQs about the protocol on my website, along with my two blogs, (one about adult fibro, one about Pediatric (Juvenile) Fibromyalgia at my family site, www.surfercouple.com.

I don't sell anything, so please return the courtesy and don't spam me with the stuff you're trying to sell. I won't buy it anyway.

I don't believe folks should profit off those who have fibromyalgia. It's an awful enough disease without folks driving us into the poor house with faux herbal supplements.

We may have fibrofog, but we're not stupid.

Category:

Education

Tags:

• guaifenesin
• fibromyalgia
• Dr.
• St.
• Amand
• Chronic
• Fatigue
• Syndrome
• CFS
• Pediatric
• Fibromyalgia
• Juvenile
• Guai

[HurtingInPain]

Well I can take deep breaths without problems, it's just that it feels like there's not enough oxygen going to my brain. I start to feel anxious and can't focus.

[dianacwolf]

@HurtingInPain Interesting. I had typical fibro problems with anxiety up until 2 years ago. Here are 4 things that helped my fibro brain calm down: 1) Changed my diet to a gluten-free. Has helped a TON. 2) I also cut out all artificial sweeteners. Splenda/Aspartame, etc. totally mess me up/cause flare-ups. 3) I found an anti-depressant that worked (Wellbutrin) 4) started on an experimental fibro med at Stanford called LDN. Hasn't done much for my pain. But, it's helped my brain symptoms.

[HurtingInPain]

I wanna ask something since you seem to know a lot about fibro. Why do I experience air hunger? It gets worse if I don't execise or sleep during the day.. I try opening the window but it doesn't help much. I feel like I've got to go outside, but sometimes I'm too tired to. Perhaps this is one of the more uncommon symptoms of fibromyalgia.

[dianacwolf]

@HurtingInPain Can you describe more what you mean by this? I think I know what you are talking about, because I once described something similar to my doctor, and he thought I had asthma. He even prescribed asthma medication. I never used it because I just figured my symptoms were fibro-related and would resolve on their own when my fibro got better. - Diana

[dawnten]

You seem like sucha sweetie. My fibro has left me with a very low attention span. :( I never did find out how you made it easier to dry your hair which is a hugeee problem with my long hair. I dry it as much as possible before putting it in a knot, at the end of the day putting it down its still damp.

[tuddyfruity4]

great vid- thank you!!

[FallaciesDetective]

veeeeeeery interesting! :O)

[HurtingInPain]

Wellbutrin seems to be a very expensive drug, plus they don't prescribe it for depression in my country. Shame, I've tried all the antidepressants on the market.