Baylee's Story- hypoplastic left heart syndrome

So many people ask about my daughter. It's so hard to explain it. I do it over and over again. So I thought I would make a video. Also because she can watch it when she gets older. When you think you have something to complain about in life... Look at my Daughter.

Category:

People & Blogs

Tags:

• heart
• defect
• miracle
• baby
• blessing
• Baylee
• hospital
• love
• family
• surgery
• strong
• fighter
• hypoplastic
• left
• syndrome

[beachbunny0690]

I found at at 20 weeks pregnant that my daughter had HLHS I was so scared for my like girl and I didn't know what to expect I was worried for her and what was going to come but now everything is fine and these baby's are strong and special this video reminds me of everthing I have went trough with my lil girl I hope everything is going good and my daughter is now 3 and is going to be going through her 3rd surgery

[almyers321]

@beachbunny0690 They all amazes me, more than I could ever begin to express. Everything is going good. My baby is 3 now as well, & she just had her cardiology appt last week. They might wait another year to do her 3rd and final stage. But next month they are doing cath a procedure and going through her neck to check out her heart a little better, so they can determine whether or not it will be next summer or sept. Keep Bay in your prayers. I will keep your little girl in mine as well. God bless!

[Sammyd851]

I am 26 years old with HLHS. I had all my surgeries at CHOP in PA. By Dr. Norwood and Dr. Murphy. God has blessed me and I have been really healthy.

[almyers321]

@Sammyd851

I am so happy to hear that. :] God has really blessed my baby and I as well... He has been with her every single second, of every single day... and he continues blessing us.

[Jaxta11]

Thank you for sharing your story!! Your photos & sentiments are beautiful. My son also has HLHS. He is 13 months old & has had his first two surgeries. We are awaiting his third, which will be around 2.5. My little boy has such a fighting spirit, I think we will all be OK. So good to hear positive stories from other people and I truly believe that these kids have such a strong will to survive, they are destined for great things and we are so blessed to have them in our lives.

[almyers321]

@Jaxta11

Thank you very much. You are so right... these babies are very special. and God has them here for a reason. They will do BIG things. It's so amazing how these small and fragile innocent children, can overcome something so difficult as an open heart surgery. My daughter is the strongest person I know. She has taught me so much. And has changed me completely. I will be praying for your baby boy. Please keep my Baby girl in your prayers as well... Thank you for the comment!!!

[charli5657]

i have HLHS too i'm 15 don't worry it gets better. if you need someone to talk to PLEASE message me i will be more than happy to talk to you about ANYTHING. god bless you and keep going strong. <3

[almyers321]

@MrBigrobmjca3

Yes she has her fontan surgery coming up... Imma scared Momma... but God has HUGE plans for my babygirl... Thank you very much!!!! You sound like a miracle too.

[MrBigrobmjca3]

23 years old, 4 surgeries later, God's been good to me. I was the first to survive HLHS at Vandy Children's Hospital in Nashville. I have a question though. You say she will need a 3rd surgery, is that the Fontan? Praying for you, her, and your family.

[almyers321]

Thank you VERY much. I had just wrote a comment under his video. He is in my prayers. When did he suffer from a stroke. Poor baby. You are the first person I have talked to, who has a child like my Baylee. You were blessed to of found out early. We didn't know til Baylee was nearly a month.