The Women of Factor V Leiden

Factor V Leiden is the most common clotting disorder among women in the United States. It is believed to be responsible for the majority of miscarriages, yet many doctors do not test for the genetic mutation until after a woman has suffered through the loss of her baby. This video is dedicated toward educating other women about FVL and the goal is to someday make it a mandatory test for ALL pregnant women!

*First off - I want to thank everyone for being so patient and understanding at the amount of time it took me to complete this project. Most of you know I was out of commission for two months while I recovered from back surgery in September.

Many, MANY ladies contributed to this video with dozens of pictures. Unfortunately, I wasn't able to use them all, as some of their formats wouldn't work with the program I used to make the video. I am by no means good with technology - but I tried my hardest and did the best I could with what I had.

Also - the video isn't chock-full of factual information. It's simply meant as a tool to spread awareness of our goal to inform others of our disorder AND to hope that more prenatal tests include bloodwork for thrombophilia. Since specific medical information on how to treat pregnant women with FVL/thrombophilia is always changing - I opted out of giving specific details of treatment during pregnancy.

Again, thank you everyone and please feel free to post the video to your own web page, myspace, facebook or wherever! I just hope that we can make a tiny difference - or at least be the ripple that starts a wave of change.

God bless!

Category:

Nonprofits & Activism

Tags:

• factor
• leiden
• pregnancy
• thrombophilia
• women
• five
• awareness
• clot

[Vleertouwer]

meh

[mktarrant]

@Vleertouwer wow. Meh? You're a pile of steaming dog shit. Enjoy your day asswipe.

[alysymon]

I had to give myself injections of lovenox during pregnancy and had a son with little complication. My concern is the recent FDA recall on bloodthinners! My son is strong boy but has a HX of repeated incidents of "allergy" like symptoms and very prone to being sick. He has already has surgery at 18months old to relieve this but still has some problems(he's 3 now). I can't say I don't question the safety of these blood thinners during pregnancy! Anyone has ANY other experiences like THIS?

[mktarrant]

Lovenox and Heparin don't cross the placenta, so your son is probably just prone to it. Honestly, some kids just get sick a lot when they're little. You should visit the yahoo group listed at the end of this video or find our group on facebook. Thanks!

[mrbillr41]

I have FVL and i am a male. I found out after getting a blood claught in my leg. What worries me is my daughters,one of which is on birth control right now. She has not yet been tested but i worry a great deal. I almost feel a sence of responsibility to them both and hope they dont test positive!!!

[mktarrant]

You should definitely tell your daughters to get tested. If they just tell their gynecologist that their father has this disorder AND had a clot, they will test right away. Many women who have FVL and are on birth control have had clots, strokes and worse. Please advise her to get tested asap or visit one of the websites listed at the end of this video

[merillo5]

Thank you for helping to spread the word that this is something all women need to be aware of.We need to get a law passed that everyone who is pregnant should get this simple blood test.The video was beautiful and Thank You for letting my grandson Damien be a part of your awareness project.

[Tangelinekay]

Thank you Michelle!

This video is a sad reminder of all the losses that have occurred! But knowledge is hope and understanding! Thank you for time to our cause! Knowledge is power!

[NekoInKimono]

I am only 22, just found out I have FVL and am on warfarin for life due to prior clots... my mom hasn't been tested yet but suffered miscarriages and preeclampsia... and so I am worried about what this means for me in the future in terms of starting a family. My boyfriend and I talked about not having kids at all. But it is so very inspirational to see all of these strong women and their families. Thanks for this video & helping raise awareness.

[amatistaelh]

yo perdí 2 embarazos, uno de 8 semanas de gestación, y el otro a las 41 semanas, con un bebé que podría haber nacido en perfecto estado. Ahora tengo una hija de 8 años gracias al Clexane y al apoyo psicológico!! los médicos no se dan cuenta de la importancia de hacer estos estudios ? gracias!!

[dany21M]

@mrbillr41 You where lucky,my father discovered that he has FVL after suffering a major stroke

[daveriley777]

I'm 48 this year and was diagnosed with HOMOGENEOUS FACTOR V LEIDENS DESEASE . This was diagosed by the Mayo Clinic in Mn. I'M a male , the youngest of six and the only one to have this mutation . Both my parents had different vascular problems , perhaps nothing to uncommon .My dad died at age 54 , my mother is still living , how ever she suffers with deep vein thrombosis still . I was on lovanox , coumadin used together , now i'm only on coumadin , ulternating doses of 10@15 mg. every day .

[Allibaby78]

Factor V Leiden mutation (named after the Dutch university where it was discovered) is a point mutation in the gene for clotting factor V.1

It has autosomal dominant inheritance and is the most common cause of inherited thrombophilia.

It leads to a hypercoagulable state. Heterozygous factor V Leiden (FVL) mutation and the G20210A mutation in the prothrombin gene are the most frequent clotting abnormalities associated with venous thromboembolism (VTE).2 The two mutations may coexist.

[DraciaNightcat]

I was on Yasmin and had a clot in my thigh last year. This year I was told I have Factor V Leiden. Kind of worried about miscarriages and what-not now, but since I came through fine while I was a foetus, I guess my kids have a good chance too :D

[hellraysinangel]

I have had a total of 3 M/C without knowing what was wrong with me. After talking to a few people and researching on the internet I started taking baby asprin as soon as I started my first cycle after the last D&C. Went to see my OB @ 11 weeks even though he told me that I should see a genetic conselor after the last m/c. Baby was looking good. Told him my mothers past and that my grandfather had thick blood. Started taking 60mg of lovenox injections 1x daily. I am proud to say I am 34 weeks!

[megzo77]

@MsCanadianWildflower I totally agree with you. I would be very angry too. I lost a child recently. It was my first pregnancy. After sleepless nights of research, I found out about hypercoagulation disorders. I have an appointment with my doctor in 2 weeks. I will ask him to test me this spring. I had surgery recently and I would rather wait a little bit. I will have a blood test done. If it comes out negative, at least I will know it was something else. But, I will not risk another child.

[megzo77]

Hi everyone, I had a scan 10 days ago and it showed that my baby died several weeks before the scan. Two days later, I had a D&C. That was my first pregnancy. I did a lot of research about the causes of miscarriages. I came across an article about a woman who had 6 miscarriages due to a hypercoagulation disorder. She noticed that she had some difficulties in giving blood. The blood coagulated inside the needle. Have you had that problem before? Ican't give too much blood as it coagulates.