Trigeminal Neuralgia - My Experience

In this video I discuss trigeminal neuralgia which is a neuropathic disorder that can impact some people who have multiple sclerosis. I talk about my initial symptoms, the medication I take and various triggers.

Category:

People & Blogs

Tags:

• trigeminal neuralgia
• tn
• multiple sclerosis
• carbamazepine
• ms
• neuropathic disorder
• trigeminal nerve
• facial pain
• facial pain trigger
• mymsjourney

[sofiya060]

Thank you so much for this.... regards from Belgium

[MyMSJourney]

@sofiya060 Wow all the way from Belgium, how exciting. Best wishes to you! Tamika

[smoovetip]

Thanks for sharing. I have this disorder also!! I haven't had a really bad episode in the past few years, but I do get frequent jolts. Been experiencing something in my ear now! I wouldn't wish this on my worse enemy!! God bless You!!

[MyMSJourney]

@smoovetip God Bless you too and you are right, it's not anything I'd wish on an enemy either! :))

[MyMSJourney]

God Bless you too Mark. After watching this video I don't think I'll have a problem saying the drug name again, LOL! Tegretol is much easier to say :)) - Tamika

[maliburide]

Great Video! Thank you :-)

[woperinoboyz]

I just had Microvascular decompression surgery to correct TN. That was 3 weeks ago and the pain from surgery is worse than any TN pain I ever suffered. I hope that one day I will be thankful for this procedure but today I regret it more than anything i have ever done! Yes, I have been TN pain free since surgery but again, these headaches and the hearing loss are far, far worse.

[givethanks7]

you have a wonderful doctor.....!!!!!!!  i was diagnosed last year April!!!!!!!!! I have been having the pains on and off since 2008!

[InCatlandWithJane]

sorry to hear you have TN too. i do not have MS, but i got TN after a concussion in a freak accident from the severity of the blow to my head (on the right side) but, i can relate to you. i also have called my doctors in tears because of the intensity of the pain. and, i know what you mean about how it is hard to talk or eat too. and the triggers! same here - loud noises, cold wind, etc. but thanks for this great & informative video. and i hope your TN goes back into remission soon. take care =)

[futurejd1]

I have had this disorder for over a year. My neuro said that I am the first case he has seen in 30 years. I have been treated for migraines and this disorder has been torture. This is the worst pain that I have ever experienced and it truly makes you want to die sometmes just for the pain to end. I too am too young, 33, to have the diagnosis, but I have it. Plus, it's bilateral. Being shot can't feel worse than this.

[dgutier4]

There is a better solution than medications and surgery. Type in Trigeminal neuralgia and chiropractic and watch some of the videos of real patients that have greatly benefitted from chiropractic. Chiropractic saves lives...drugs don't!

[MrMontell1000]

HELLO, MY NAME IS KENISHA MACK OF LISMAN AL. I THOUGHT THAT I WAS THE ONE WITH THIS PAIN. AT ONE WHILE I FELT LIKE I WAS GOING CRAZY. I ALSO HAVE THE SAME PROBLEMS THAT YOU HAVE. I AM GLAD THAT I AM NOT THE ONE. I HAD TO QUIT MY JOB BECAUSE I WORKED IN A FACTORY. I WONDER WHY THE PAIN IS ONLY ONE THE RIGHT SIDE OF THE FACE. FEEL FREE TO CONTACT ME AT MACKKENISHA@YAHOO.CON. I HOPE YOU GET BETTER AS I. GOD BLESS YOU

[sunniemostlee]

I was prescribed tegretol yesterday at the ER. My dentist and endodontist suspected I have this. Last night the pain was SO unbearable, so I went to the ER. Thank you Dr. Garrit for taking time and researching my symptoms. I am getting so much strength from the TN community. I thought I was going crazy. And YES, I have a very low tolerance for loud noises now, where before it was no issue. Anyway, thank you for your video. I will be getting an MRI/MRA next week. (The MS link scares me.)