Uploaded by bellasblessings on Jul 31, 2011
Bella Dances
Sweet Bella, how she loves to dance;
She'll steal your heart, given the chance.
Freedom finds our sweet little girl;
Dancing, clapping hands doing a twirl.
Though she has yet to say a word;
When Bella dances, she's free as a bird.
Her little voice trapped deep inside;
Yet her curiosity she cannot hide.
Life has dealt her some difficult blows;
She rises above them, off she goes.
Sweet Bella is precious, God's gift.
Knowing her gives your spirit a lift.
Dear Jesus, Please bless Bella anew.
Give her strong bones, good health too.
Build her curiosity to reach for her star;
Cause it to carry her near and far.
Though Doctors in medicine are well trained;
They often forget there's power in your name.
Please touch this little girl and hold her near;
Let her feet run one day, swift like a deer.
Thank you Lord for hearing our plea;
Your blessings for Bella, we already see.
Let her voice one day carry the song her heart sings;
In Praises to heaven, her gift to you on Angels wings.
Let her feet dance, sweet dances for you;
With a heart that loves you and is true.
Jesus loves the little children, he's their best friend;
We ask you for these blessings in his name. Amen.
You are invited to help Bella too: http://www.facebook.com/event.php?eid=196669880386200
Bella is a sweet and beautiful child living in our Community who needs our help. She is the daughter of Adam Coren and Alisha Smith. Her grandparents are Walt and Diane Osbon.
Bella is a trooper and we want to help give her every opportunity to beat the odds. The Severn-Pendleton Ruritan Club is sponsoring "Bella's Blessings Benefit Lunch" on August 19th. Pork Chop Plate, $7.00 donation. Plates may be picked up at the Severn Community Building from 11:00 am to 1:00 pm. Donations will go to help with Bella's special needs. Donations may also be sent through PayPal to: bellasblessings@live.com
Born with Hirschsprungs Disease and club feet, she spent the first two months of life in the NICU at CHKD in Norfolk. Surgery was required to remove a large section of her colon and she was given a colostomy bag. After several months, she had surgery to reattach the colon and reverse the colostomy.
To correct her club feet, surgery was done on both feet and wore a cast from foot to hip for several months. She also has had heart surgery and has a nickel titanium plug inserted in one of the valves. Eye surgery was done to correct her peripheral vision (she was seeing a blurred double image). Ear surgery corrected her hearing, which they discovered had been lost.
Her parents and grandparents became concerned with her developmental delays. Soon she began to receive physical and speech therapy through Northampton County. Due to her lack of progress, she was referred to Duke Children's Hospital. In the Genetics Department she had a series of test done. Bella has now been diagnosed with Mowat-Wilson Syndrome which is a rare genetic disorder and mutation or deletion of the second chromosome. Only approximately 200 people worldwide have it.
Doctors expect severe developmental delays and most likely she will always be dependent on her parents. At this time, they are working on getting her a walker. She begin to wear corrective shoes for her feet and may require another surgery on her left leg down the road for her knee that turns out.
In September when she turns three, she will start school at Central Elementary in the Exceptional Child Program.
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