janna seizure january
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your note brought tears to my eyes and song to my heart. where there is great love there are miracles! praise God!
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Poor thing. I wish she didnt have to go through these.
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What a beautiful child of God. My granddaughter was diagnosed with IS at the Cleveland Clinic Children's Hospital last month. We have started the daily ACTH injections and we got to rejoice at her first smile...twice! My heart goes out to you.
majaken4 3 years ago
Thank you for your note. We may be starting low dose ACTH in a few weeks time. Right now we're trying some different medications to see if they are effective in controlling her seizures.
God Bless.
eppicphotography 3 years ago
We just finished ACTH several weeks ago and are now weaning and her EEG was spasm free!
So now we're hoping it stays that way!
eppicphotography 2 years ago