Neurofibromatosis (NF1) Awareness by Naomi D'Amato.

Ethan was born with the genetic condition Neurofibromatosis type 1. NF1 has no cure and may lead to major lifelong medical problems and severe facial disfigurement. Ethan's right eye has been removed due to NF1.

Ethan's sibilings are raising funds for him by playing the violin.

Category:

Music

Tags:

• Neurofibromatosis
• Ethan
• Naomi
• D'Amato

[13Wiers]

I have NF! to I have a large plexiform tumor on my right leg. I am in the hospital because its swollen and hot do you guys go too boston children's hospital?

[naomidamato123]

Yes. Five years ago, when Ethan was a year old, my family took him to Children's Hospital in Boston. Ethan's right eye was removed at that time and we met different doctors.

I hope that your leg gets the right treatment and that you get better.

[TimmyBawesome]

i have it and i dont have any muscle tissue on the left foot...

[AidilPutra123]

I also have NF1 :(

I see there other people too have this genetic illness

[getitdonedunning]

@akiss2give Is the Swedish Med Center from Silverdale Sweden? I spent time in Silverdale Sweden back in the 1980's.

[UponYourFarewell2]

u must have a big heart(:

[babycricket522]

I have it

[sillyscott2]

nf1 i have it

[AMERICA5833]

nf

[AMERICA5833]

nf

[AMERICA5833]

nf



[ayacardenas]

Me too!! I als have NF1