CI failures lawsuits and AG Bell

go to: http://www.weitzlux.com/failed-cochlear-implants_1937570.html for more information on the lawsuits. Advanced Bionics had to pay $1,100,000 and their ceo was fined $75,000
Advanced bionics sued for violating FDA regulations re: CI safety by Weitz and Luxenberg - 2nd suit in process - Teresa Curtin Deaf lawyer. Meanwhile Advanced Bionics is at the top of the AG Bell Assoc homepage

Potential symptoms of defective cochlear implants include:
# A sudden sensation of discomfort or pain;
# A sudden loud noise or popping sound;
# An intermittent functioning;
# A complete loss of sound;
# In infants or children, an unwillingness to wear the external headpiece, crying or fussiness when the sound processor is turned on, lack of expected progress or diminished progress in achieving speech/language milestones, or apparent loss of audiological benefit.

Category:

People & Blogs

Tags:

• cochlear
• implant
• failures

[pdurr]

think many have faced your dilemma sadly - it is not just Deaf parents who at times get lulled. Many parents dont have the resources or choices to move or to fight the system etc. Im glad u tried but sorry it did not satisfy you. I love how you wrote " become more aware of their places in society as Deaf people" we all gotta find our place and our center and once we do we usually find our feet soon after.

Look me up in Rochester - gonna go walk my dog now

wishes for a smooth journey

peace

p

[Mayes2010]

There is a Even there is an atmosphere... "don't bite hand that feeds you" at ISD which receives funding from the state (100% state run school.) So I chose the different path and it has been quite an experience for me. As my kids get older, I face the question of what I want for them: to become more aware of their places in the society as Deaf people so Rochester, NY appears to be the ideal place.

[Mayes2010]

Yup. Experiencing oppression (for me, it feels comfortable to use "oppression") has impacted me a lot in the last four years, experiencing and observing how the state government treated differently abled people, especially in the education area. It quickly became a question for me to want to fight for my kids or to become one of the Deaf parents who allow themselves to be lulled into apathy, choosing socializing over concerning themselves about deaf education. cont...

[pdurr]

I have seen parents who have chosen CI called child abusers - i do NOT support that.

I have seen parents who have chosen not to implant their child called child abusers - i do NOT support that.

i support finding the truth and the TRUE facts.

We need to know the facts about CI especially in light of your son considering a 2nd.

i know you are a good and caring mom just as i know the parents who choose not to get their kids implanted are good and caring too

look forward to meeting u soon

peace p

[pdurr]

HI Karen

Im sorry about the audism or if you prefer oppression you have experienced in Indiana. I hope your move will bring you what you are seeking. While folks are just beginning to learn what audism means and how to NAME the experience appropriately there are a few who may be misusing it. There is also a backlash that is totally misrepresenting things and spreading myths and misinformation.

cont below

[Mayes2010]

con't.. My son has a CI, making me a traitor. A child abuser because I supported my kid's desire to talk. All the labeling has left a bitter aftertaste in my mouth. I strongly believe in respect. I like Ella, Barb Digi, DeafChip, Carl S., you, etc. And I also like Barry, Mike McConnell, Paotie, etc. If we meet in person, you'd find me a harmless, quiet, average person who likes reading, spending time with friends, etc. I am just wary.

[Mayes2010]

Yes, I have seen ignorance, apathy, etc... especially in the state of Indiana, from the Department of Health toward differently abled people. One of the reasons why we are moving out of Indiana... I don't want my kids to be exposed to it any longer. I believe that the word audism still needs to be defined more and more so that it won't be often used as a weapon against other Deaf people in the Deaf community. con't....

[pdurr]

@ Mayes2010

hmmm

a lot of trials were fought in court about racism before the term was legally recognized

dont really follow your thinking here

re: weapon in the Deaf community - the most dangerous one appears to be ignorance, misinformation and apathy.

Do hope you will undertake whatever approach you feel is best to get more facts about CI - its important.

Peace

Patti

[Mayes2010]

I think that it's good for asking FDA to do more research on CI, release success/failure statistics, etc. It'll take FOREVER. As for me signing the petition, I will have no problem with it, but I don't agree with the AFA because I feel the word "audism" needs to be defined more and more and once it's acknowledged its place in the legal system, then I will sign the petition. Meanwhile...as long as it's used as a weapon in the Deaf community... *shrug*

Peace, K.

[pdurr]

re: organic food - yes this is why we are part of a farm cooperative - not only do we get to part of the growing process and see and get dirty with the food we are growing but we also know its safe and are supporting organic farming.

re: BPA and CI - i understand your choice. Wondering if you have any interest in signing the petition for a more thorough investigation of CIs. Goal is for parents not to have to worry and search but for ALL of us to have the FACTS. full disclosure

peace

patti