Facts&Faces of Neurofibromatosis
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Uploaded by sib9934 on Mar 29, 2010
Facts about the NEUROLOGICAL GENETIC DISORDER NEUROFIBROMATOSIS along with some pictures and song
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I'm Todd....I have NF1 and a left leg below knee amputee....Lost my dad and brother to NF and an older brother with NF1 and scoliosis ...
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I would like to thank u for the video. My 4 year old grandson was born with it. We all love him . We worry that in school he will be teased or bullied about his cae au lait marks. He is so far above average however his motor skills are not great. I wish one and all with NF1 the best in life filled with health, happiness and confidence. Beauty is from within .. never stop to remember this. hugsssssssssssssssss
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iv got this disorder and i didnt no it was that bad my mum must of lied 2 me about it told me i wuld only ever have the marks and thats it,... now i jut wanna no more about it now
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Sam was a great kid and friend
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@jaspernt thank you i am glad you liked it
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@amberlbrowning sorry it took so long to respond have not had a computer....i have over 00 friends on fb with nf....come meet us!!!! my name is Siobhan Clarke....if you cant find me....look on Reggie Bibbs, Maurice Simpson, Jerry Wilman...look on their friends lists...they all have nf as well
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@bailey44422 really that is awesome!!! i will check it out!!!
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thank you for sharing.
Boursta555 1 year ago
@Boursta555 thanks for watching
sib9934 1 year ago
This is done so well. I love it.
morguebabe 1 year ago
@morguebabe thank you
sib9934 1 year ago
Very nice video! It's really educational for the world to become aware of this disease. I really do hope a cure can be found, since I've met a few NF'ers already and hear about how the disease affects their lives =(
heather621 1 year ago
@heather621 thank you and thanx for watching
sib9934 1 year ago