4th Tysabri and the E.R. Living wtih Multiple Sclerosis

4th Tysabri and the E.R. Living wtih Multiple Sclerosis

Category:

Education

Tags:

• Multiple
• Sclerosis
• Spikegrl1000
• MS
• Tysabri

[laurenvparrott]

Hey Steph! I'm so sorry you had problems like that in your face! That hasn't happened to me so I have no idea what to say. I have had bruises like that on my arms though for the past 2 infusions. At least it makes me look like a hard ass!! :) And now a lung infection...I'm sorry.

My mom comes to all my infusions! Your Mom looks so sweet! And I like your hat - I should have worn one in the hospital but instead my hair got in knots and looked like crap. I hope you get better ASAP!!

[spikegrl1000]

Thanks Lauren! I'm feeling much better now! Back to the old grind. My face froze up again but it recovered a lot quicker this time. I guess it's just a new "quirk" I have to deal with!

[nsirgado]

i have a cowerker who also has ms, he had similar symptom happen to him, he was in shower when he had involuntary movement of neck and face, he then had a seizure, he's had ms for bout 10 years, me since 2003, were emt's i cant take blood pressure's like i used to, or take a blood sugar due to my left hand trembling, taking steps to get into tysabri, had allergic reactiom to copaxone, and beteseron. Well hope to hear from u, take it slow:-)

[spikegrl1000]

Thanks for the comment. It happened again Tuesday morning but didn't last as long. Take care of yourself and hopefully you can get on Tysabri.

Peace

[erosimpact]

I was diagnosed in 2004. I had an episode that lasted about 5 days, where I had the right side of my face get droopy, also. I also thought it was a stroke (But I'm only 41!)

Glad that you didn't have a stroke! Good luck!

[spikegrl1000]

My face has come back but now I have a lung infection! ARGH! They thought I had a stroke too, I'm 34 and I knew it wasn't. Now I'm playing Dr. hop. My MS doctor says call your primary care but my primary care is about a week long wait!

[angelrain57]

Steph thanks so much for the info I appreciate all that you say because I have my first infusion this Wed. and I was so afraid till I watched all these Utube vids I know that it was the Lord speaking to me through these vids because i prayed earlier and asked him to confirm to me if I should have the infusion ... am I afraid yes but I'm still going to have the infusion. I will keep you in prayer I hope that your lungs are better.

Thank you MS sister.

[dmplaura]

I'm RELIEVED to see this video. I had exactly what you describe with the facial spasms with my MS. I also get nerve pain shooting in my face, which causes burning sensation into my mouth. Horrible. But you are not alone!

[vbeachy]

Hi Steph!

Back a year before I was diagnosed with MS I had the same facial symptoms (I, too, thought I had a stroke). The doc diagnosed me as having Bell's Palsey and when I had another attack almost a year later...that's when I got the diagnosis of MS.

[lovecats123456]

"hemifacial spasming" is what my ms neuro calls it. he has referred me to a pain clinic for possible botox injections into the affected facial muscles.

[laurenvparrott]

I'm so glad you're feeling better. Hopefully it won't happen too often!

[7mumfred7]

Steph...see the video by Vern Beachy (vbeachy) today, he had facial and also eye issues, thought he had a relapse but it turns out it was only a Shingles attack....is it possible (you have an infection too).....

And - That is NOT a bad hat - it is Cool !