Myelofibrosis Update -Mayo Clinic

In this latest installment of his video series on myeloproliferative disorders, Dr Ruben Mesa, a hematologist at the Mayo Clinic in Arizona, provides an overview on Myelofibrosis. Learn about symtoms and treatment options associated with this condition.

Category:

Science & Technology

Tags:

• Mayo Clinic
• Myelofibrosis
• Myeloproliferative Disorders
• Mesa

[atmaku]

hi Dr. Mesa. my mom has been diagnosed myelofibrosis about 2 years ago. she was in malaysia and i am currently in the united states. so i didnt know how her progress so far.

currently, what i noticed that her blood level decrease every month. and the latest, it has been only 3 weeks since the last time she go through blood transfusion in order to increase her blood level.

my question is, : what is my mother stage if currently her blood level drop to 5hb and approximately how long she has left?

[mayoclinic]

@atmaku - We are looking into an answer for you and will post the answer in on the video page, where you first asked this question.

[dotonthewall]

Thank you for the wonderful explanation of the disease. I have a much better understanding of it now and will follow closely to see if there is anything that will help me to improve. I am 64 yr old male and believe I am in the earlier stages of myelofibrosis. Fatigue is normal for me and some leg pain and night sweats. I will follow info that you give out on a regular basis. Thank You

[XsecretXfireX]

i mean is there an alternate course of treatment that you may have suggested.

[saalanc]

@XsecretXfireX I'm sorry for your loss, but I'm not sure the question 'what would you do' makes sense. Do you mean, what course of treatment should she have taken? Or, do you wonder what you should do in the future?

[XsecretXfireX]

my mother died of MF on April8th 2010 she was 53 i am 15.she had it for even over 15 years because she had Gaucher's disease as a child so they ignored her symptoms until it was to late and she got to the point there a Bone marrow transplant was the only option even with her age.it took 9 months to find a 5/6 donor match for my mom and when she got it it didn't work..so she also had a splenectomy...she then tied 5 weeks later of septic shock.she also had an infection her blood what would u do???