Living with Multiple Sclerosis - Tysabri and PML.mpg

I keep feeling better and better!

Category:

People & Blogs

Tags:

• Tysabri
• PML
• Multiple Sclerosis
• MS

[Himi2112]

Hi! My name is Sam,(female, 23, London) I was diagnosed with ms on 13th July 2010. For the most part my symptoms have been minimal, they occurred on two occasions and have been not entirely life altering (slight numbness, "vibrations" and finally vision problem in my left eye) but, I feel, the unpredictable nature have left me mentally crippled...unable to move on, unable to enjoy life as it is right now, because i fear the balance of happiness to pain; will be that if i enjoy myself, the unive

[laurenvparrott]

@Himi2112 Hi Sam! I'm so glad your symptoms are minimal...but I'm so sorry that you feel mentally crippled. I completely understand where you are coming from. I was diagonsed in 2002 so it's easy for me to say this to you now, but you will find strength that you never knew you had and I promise, you will adjust to everything! I'm so sorry that you wonly have a handful of people that understand you, but at least you have them! They will help you through any situation you face!

[toscar98]

Shared Solutions has helped me by giving me a years supply of Copaxone, There is hope. I am exited about Mark's CCSVI treatment and will be following up with him. My neuro's won't even talk to me about it(Too simple), yet when I ask them questions about my present symptoms and if Copaxone is working they don't know, So how do they know if CCSVI won't help? It makes me crazy, I feel it's all about the money.... Makes the world go around.... We all need to beat this M.S. thing..

Jeff

[laurenvparrott]

@toscar98 Hey Jeff! That's wonderful! I know it's so frustrating! MS can be a guessing game...and when money gets involved it makes me sick. We do need to beat MS!

[toscar98]

Hi Lauren, I am very happy to hear you have sorted out you Tysabri issue, I am glad Vern was there to support you. I wish you the best and you have a great attitude for such a crappy disease. I am still working on my drug cocktail but with no insurance. If you ever want to email or talk to me go for it. I have my moments, normal one minute and crying the other like all of us M.S. patients. You are my Tysabri advocate, and I am so happy to see your bright smiling face.

You go girl... Jeff

[laurenvparrott]

@toscar98 Hi Jeff! Thank you so much! Yes, Vern is the best :) You are so sweet, I really appreciate your message! I feel the same way - if you ever want to email me, go for it! I wish you the best with working on your drug cocktail...I know it's really hard when you don't have insurance (I've been there) but I know drug companies offer help. Good luck and keep in touch!!

[Himi2112]

Other than my fiancé, my law school mentor and my best friend, I haven't peeped a word... Other than these people I've stopped speaking unless necessary, and I don't know what to do anymore, ms is punishing enough, but I think I'm doing it to myself more than what ms could ever do...but I don't know how to stop...

Do you mind emailing me sometime? Perhaps we can just talk...

I look forward to hearing from you.

Sam himi0230@yahoo.com

[Himi2112]

the universe will balance that out with another ms attack. Im sorry to babble on but your videos are inspiring, and you seem like an incredible warm brave person who i feel just might undestsnd where im coming from...

along with the fact that I'm from a third world country, where my parents/family still reside and have never heard of ms, this disease makes me feel so alone, and I've pushed away most of the people in my life in quite a short time... Other than my fiancé, my law school mentor a

[laurenvparrott]

@robbykhu Hi Robby! Thank you so much for your comment!! I'm so glad that my video could help you! Good luck, and I wish you the best!!

[robbykhu]

@laurenvparrott hi, just to update, i had my 1st infusion in december and i'm now writing this relapse free! the 1st time in 3 yrs! i'll say it again - you have the happiest smile ever! makes me smile. be well, stay happy robby