Dup 15q IDIC15 - Cody's Poem (old)

Isodicentric 15, dup15q, or IDIC15q - This poem was written the day we came home with his diagnosis shortly after he turned one yr old. I was struck at how similar it felt to bringing Cody home for what seemed like another first time - like it felt right after he was born. Cody was diagnosed with IDIC 15 tetrasomy syndrome in Mar 2010. He was born with four duplicate copies of chromosome 15q instead of two copies like most people have. It's very rare and no two kids are alike in regards to their symptoms. For more information please visit www.idic15.org
*** I do not own the copyright to the song "Tomorrow's Child" by Spencer Brewer ***

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• idic15q
• Chromosome
• 15q
• dup15q
• autism
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• needs
• Duplication
• Syndrome
• disorder
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• pseudo
• isodicentric
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• cody's
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[SCENTSationalSoaps1]

Very touching video! You have a beautiful family! Our son Chad has Chromosome15 with partial duplication on the long arm. Maybe we will be able to meet one day, possibly at one of the conferences or family gatherings. You have our support!

Lets keep in touch!

[idic15mn]

@SCENTSationalSoaps1 Thank you, I hope we can meet at the conference in June. We've met 5 other families on our own so far, it's like the best medicine for the rest of us. It's wonderful how we all "get" each other's feelings and it's so nice to have others cheer our little milestones that others may not quite understand.

[stephiemoo121212]

What a beautiful video. A beautiful little boy. I'm sure you feel so blessed to have him. I can relate; both my children have been diagnosed with 22q11.2 duplication. The chromosome disorder may be different, but the feelings and emotions you experience are the same. It's scary not knowing what the future will bring. Knowledge is power and there is strength in numbers. Family support is so important! I think it also helps a LOT. Anyway, I wanted to say thank you for posting this and for sharing.

[idic15mn]

@stephiemoo121212 Thank you, we watched your videos as well and the struggles you're going through, stay strong. You sound like a wonderful Mom, your boys are very lucky ;)

[kevindcox1]

Our 14 month old son, Fynn, was just diagnosed with isodicentric 15. I felt like your video was made for us, as it so hit home. It is a time for the family to stand together and do what is right and give all the love in the world to him and his brother.

Thanks so much for sharing! Kevin

[idic15mn]

@kevindcox1 Thank you for watching! Keep up your family's spirits up like it already sounds like you are doing. We've found that is as helpful or more than any treatments or medications you will probably go through together as a family. Look for an email on here from us ;)

[idic15mn]

Three months down the road later, how could we have not remembered something so important? When it's the absolute darkest out, that's when you can see the stars the best. And not so long ago, sailors on the oceans used to use those stars to always guide themselves home safely again. Thank you to our Ideas friends and our families for being the stars in our world.

[SCENTSationalSoaps1]

@idic15mn Yes, we are all there to support each other, even though each child is different we still have alot in common. Lets keep in touch! Luv, Sarah xoxo

[idic15mn]

@sarahjanehill1 We are friends with some families in England! Look for a personal email from us. We watched your video also, what a handsome boy! You are definitely not alone ;)

[sarahjanehill1]

my son has 15q deletion de novo he is the only child in england.....the medic are writting lit about him.....i really like your video........i have tried to down load one but for some reason no music has come on........its like one lonely pathway to unknown land........your children are beautiful ;0) sarah

[jickoy1220]

@idic15mn

Thank you for your warmth sympathy...You are absolutely right. We are far behind our plan because everything slows down due to the condition of our daughter. But I can feel how hopeful you are with Cody, and it please me to hear that a lot of you finds hope in spite of the uncertainties of the conditions of our little angels...Thank you for your inspiration.