Information on Mona's case of Rett Syndrome
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Uploader Comments (loishack)
Top Comments
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sweet baby. She smiled the whole time <3
2 years ago 5
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She's beautiful & reminds me of my Jess who also has Rett Syndrome & taps her chest & grinds her teeth (the noise also drives me nuts!). Thankyoufor sharing little Mona, I love seeing what other Rett girls are up to, it makes me feel less isolated.
3 years ago 5
All Comments (22)
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God Bless her :)
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found out a month ago that my daughter has rett's
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She's such an adorable girl, I am writing something that involves a character with RS and I was just searching for videos to watch to get an idea of what I'm talking about. But thank you for posting this
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she so cute
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have you thought abput getting her a dynavox communiation device
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Can you give me some news Of Mona please?
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i think she has cerebral palsy
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Such a beautiful little girl!!
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She is a beautiful little girl, and you do extremely well with her. As a parent with a special needs child I know it can be very trying to feel like you're parenting these kids correctly. She is so happy, and very responsive to you. I love the video, and hope she is doing well. You all are in my prayers.
2 years ago 3
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I messaged her mom a while ago and she replied yesterday. She told me Mona had to get a G-tube put in back in January and her scoliosis is starting. She will find out in a few months where they are at with it and what they need to do.
hp21586 2 years ago
Thank you.
Currently, Mona's scoliosis is getting worse so we have an appt in the orthopedics clinic in the next couple of weeks. Most likely Mona will need surgery to correct her scoliosis. I will update after the appointment to let you guys know what's going on. Thank you you guys. :-)
loishack 2 years ago
u have a really gorgous girl,all she's doing suits her angel face,sooo adorable and cute,may god give u new strength every new day
kamranalimirza 2 years ago
Thank you so much. She is the sweetest girl. Thanks for watching my video of my lil Miss Momo!!
loishack 2 years ago