Actual Epileptic Seizure

An actual epileptic seizure. The patient has had them since the age of nine months. They have been labeled as Infantile Spasms. She has been hooked up to machines which have said that when she has these jerks, there is electrical activity throughout her whole body, not just in the brain. Various medical treatments have been tried, including brain surgery in New York City, the implantation of a Vagal Nerve Stimulator or VNS, plus many different medications such as Felbatol and Topomax.

Some say the brain surgery in 2000 helped, but she still has seizures at the rate of about one a week now. The VNS(2007) proved ineffective, but that still remains as inconclusive evidence since the staff at the hospital which installed always averred "something was wrong with the VNS unit, there's a short in it, or it's not sending information correctly." We were advised "we'll turn it off" and they did. Really it never seemed to make a difference.

Towards the end of the brain wave monitoring session in the hospital, which lasted five days and nights, we lowered her Felbatol medication to almost zero. Although we gradually re-upped her meds to the same level as had previously been, she began having much worse seizures than she'd previously had, and even with extra Felbatol, the seizures remain worse, never to return to the type seen here, which now seem gentle in comparison.

Category:

Education

Tags:

• epilepsy
• seizure
• infantile spasms
• jerks
• nods
• epileptic
• Felbatol
• Topomax
• seizure disorder

[merrypresent]

@HeadGirl Yes. We got rid of it, though, because we were afraid she might fall off some night.

[merrypresent]

@lawnservjoe She takes Felbatol, and she had a VNS implanted.

[mer1977]

hi,

this looks a bit like the seizures my daughter had and she was diagnosed with West syndrome and then she was treated for it.

she no longer has infantile spasmes but stil is epileptic.

there are some video`s of my daughter on my channel... she had many different kind of seizures.

good luck!

[msfreebyme]

@AngieT1987 if you would like to know not all seizures are like the ones you see in movies (which are called from my knowledge grand mal seizures).

The seizure in the video is called a partial seizure. She has an absence in thought and jerks her body a bit. Theres all different kinds of partial seizures.

You should look it up. =)

[AngieT1987]

Ok I thought this was supposed to be a seizure video? Where was the seizure?

[clone231428]

jeez people have some sympathy its not her fault shes like this cant we all just try and make her life non miserable by at least not making fun of her

[kavscouser09]

lollololol

[SmilesBringHappy]

why is every single one of these comments replies? that sucks ass so much

[ashleyjohnson590]

@nezzi69 You are too sick to help. For the good of all mankind, end your life pronto!!