Ashley gastroschisis video
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@armyofflowers I'm CAO of Avery's Angels Gastroschisis foundation. We're based in the US but have families all over the world available for support!
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I just want Ashley to know that she's isn't the only child to be born with gastrochisis but that I am too a gastrochisis born baby and now am currently 15 years old (male). Its good to know that I am not the only odd one out anymore :D
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Congrats again, she is adorable
from Father of 17 year old gastro baby :)
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i was a gastro baby in 1997 im glad too here that ur babay pulled through god knows what ive been through and yet here i am they said i wasnt ganna make it but i pulled through always know that survivers of gastro are conciderd mirical babys but i guess you already know that there is no better fealing then to hold your baby in your arms and knowing that god gave her a second chance
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@hollynsarahrhot Wow! I'm just 20 weeks and found out at 19 weeks the same thing! I heard there is a group on the internet called "GEEPS" that is for people who have been through and are going through the same thing. Feel free to message me if you need to talk!
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@idahoforsale - research does show a strong correlation to environmental causes, but not enough has been done yet. Please fill out the survey at birth defects org . Also, I would love to include your story in my upcoming trip to Spain (in 2 weeks) to present the family perspective of gastroschisis to a group of international doctors. Please email me at kayte (at) averysangels (dot) org. For some reason youtube doesn't let me post that correctly! thanks
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@John1962R Is she on feed tube still? Our daughter is almost 2. She had atresias dead end branches on small and large that where cut out thus becoming TRiple whamy, short gut, gastroschisis and liver hanging in balance. I think there is a site one of our nurse talked about just for gastroschis.
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In 1956 my mother gave birth to my brother, Ricky. He had gastroschisis. The OB doc took my dad to the nursery to show him the problem, and told him Ricky would not survive. He lived for only 18 hours. I was born later, in 1957, then my sister in 1958. I've always felt the loss of my brother, even though he and I never met. Thank you, survivors, for sharing your stories!
It's a huge blessing that this condition is now treatable, albeit without its complications. and I'm so happy to hear from p
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Congrats!! I am a 15year old boy who was born with gastrochisis and although my naval is stitched up I am a proud to say I am a miracle baby :D
IAmGoodBoy69 7 months ago
@IAmGoodBoy69 ((hugs)) to you! :)
mommy2at 6 months ago