Porphryria Makes You Vomit and Die

The porphyrias are among the most-hated diseases in medicine.The porphyrias are a family of diseases caused by errors of heme synthesis, variably expressed and (no doubt) much under-diagnosed (Postgrad. Med. 86: 295, 1989). Since porphyrin synthesis enzymes are in short supply, the common ones are autosomal dominants. All are semi-treatable. All get missed, and the patients suffer and die (Medicine 71: 1, 1992). Easy updates: Lancet 365: 241, 2005; Ann. Int. Med. 142: 439, 2005; Am. J. Clin. Path. 119(S3): S-86, 2003. New porphyrias continue to be described (* for example, a coproporphyria variant with severe hemolysis: Blood 91: 1453, 1998).

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People & Blogs

Tags:

• porphyria disease
• dying
• vomiting
• death

[boomer76]

I forgot to mention I went through an handful of doctors. Mostly because they didn't want to handle me becuase they didn't have the knowledge about the disease. I found one that did and he wouldn't treat me properly so I fired him and got a hematologist that has been great with me. Panhematin with my monthly attacks and d10 twice a week each week. It's helped a lot.

[deathbyporphyria]

Thank you..

[boomer76]

I have aip. I've had a terrible time with our drinking water since it is chlorinated. I just got a point of use filter that is supposed to filter out the chlorine. Now I've just got to get it in. Hope it works. I'm sick of nueropathy.

[deathbyporphyria]

thank you for taking the time to review my info.

[cherniman]

Thank you for posting this. I am a medical student. I eventually want to specialize in treating porphyias and hopefully find a cure for these disorders. I am sorry for your bad healthcare experiences. I wish I could say it is rare but I have experienced it first hand when I was sick. It's horrific. After being in medical school I now understand it's not the doctors that don't want to treat the patient, it's the insurance companies and hospital administration that kicks people out of the hospital

[deathbyporphyria]

thank you I am suing the doctors.

[jimBoRare]

Try the Hemp Kim!!! I'll ship ya some gnarly bud !!

[porphyria2]

I hate to go on about it, and I know its not the same for everyone but I can only say what has stopped the suffering for us. Porphyria is a chemical sensitive disease. A world renowned Dr. Mercola you can find on Utube a natural path gives great advice for non toxic living. This is the only way it can be beat you have to go organic no processed food. A TOXIC free home. From the school of Albert Einsteins school of medicine look up Dr. Laibow on Utube. I wish you well.

[themainman2008]

I have epp but I don't vomit for more than 2 days within a 5 year gap, I feel sick most of the time get pains in my liver and kidneys area but I still wake up the next day(think its my mattress) ..I'm just waiting for the that hand to come down and touch my soul and take me away

[KioruSan]

Wow. This is plain horrible. I feel very sorry for you. This disease is one of the worst I've ever heard of...

[drumheadcircle]

Try little cubes of raw angus-swallowed whole. That and all corn, and beans.

[nagashud]

blood makes stop vomit for porphyria diceases

[SuperEvilArtist]

A reverse-asmosis water purifier is recomended for those who suffer from any of the porphyria's. I have AIP and use Panhematin regularly to keep it at bay. For sickness I eat 3 grams of either medical marijuanna or hash. This greatly reduces the nausea and helps with the appitite.

[FliffyFloffyFlaf]

Is yours son doing better? :/

[newmoongathering]

im sorry you suffer from such a terrible disease. my aunt has porphryia, and i have lyme disease and i wonder if it is possible that heme synthesis could be disturbed from unoticed infections such as babesiosis and bartonella? my aunt is positive as well for baseosis and bartonella, and i wonder if this is why here porhphyria came out in her middle age? its just a idea.

[mywavesofgrain]

Also if you are a med student reading this, our doctor who finally proposed these symptoms had the signs of the porphyrias also said that in med school they learn that the blood disease is so rare that most of the time they do not go into much depth on the subject or known testing of AIP

[mywavesofgrain]

How would you feel if you broke your leg and you couldnt walk, but they tested you and tested you and you swear it is broken, but all the x-rays look like your leg is just fine, and any and all other tests on muscles, ligaments, nerves say all is fine. You would feel crazy. Imagine vomitting like this woman's poor son, who has no explainable reason, no tests, no poisoning, no tears, lesions, cancers, and yet keeps vomitting. Blood Poisoning-check out the movie Powder, or The Others-Porphryria.

[mywavesofgrain]

Look the problem here is that people have mysterious attacks. They get tested for everything under the sun, moon and stars-results will come back negative every time. This leaves doctor's and staff up in arms with difficult prognosis. Blood needs to be tested and sent to a lab for porphyrin disorder. Our family has this disease passed down through generations now, and it has now attacked two possibly three family members. Many Many doctors were baffled by neg test results.