Mastocytosis
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Uploaded by kittybuglove on Jun 30, 2007
The struggles for Candice and many other children with Mastocytosis, a rare, but serious, skin condition.
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@mama4loca I hope he does grow out of it!
zoedish 5 months ago
@Poetessa2 Thank you for the support!!! I'm glad that you're well and that's awesome they have the same birthday!!!
zoedish 5 months ago
@RMDelete the video is not really about being depressed and feeling that her life is over because of this disease. It was really meant to help spread awareness of what mastocytosis is. I know it's not really a super uplifting video, but I definitely don't mean to express that we have no hope for her. she's definitely leading a really normal life. I love my little sister so much and we're so happy to have her in our lives. :)
zoedish 5 months ago
I'm Candi's sister, Zoe. I made this video. She's five now and she still has masto of course, but she's handling it well! We've just about mastered keeping her from flaring up these days and she's really happy. She's spunky, sweet, and sometimes a little crazy like any five year old can be. She just started kindergarten this week and she loves it so far! Thanks to all of you for your support and for those of you that have masto or loved ones with the disease just keep up hope!
zoedish 5 months ago
My oldest daughter who is now 10 was diagnosed with this disease when she was 10 months old. We actually got her diagnosis on 9/11. That was a hard day all around for us. She suffers from this daily. She's on zyrtec and zantac but as you know they don't help too much. She wakes up nauseas and has stomach pains every morning. She's scared to go outside when there's a lot of bees. I'm trying to help her to conquer her fear. She will go outside easier now than she did a year ago.
mommy2girls3 10 months ago
My oldest daughter who is now 10 was diagnosed with this disease when she was 10 months old. We actually got her diagnosis on 9/11. That was a hard day all around for us. She suffers from this daily. She's on zyrtec and zantac but as you know they don't help too much. She wakes up nauseas and has stomach pains every morning. She's scared to go outside when there's a lot of bees. I'm trying to help her to conquer her fear. She will go outside easier now than she did a year ago.
mommy2girls3 10 months ago
@asapdiva what the hell are you talking about? Please read and fully understand whatever you plan on responding to before responding so crudely.
RMDelete 1 year ago
@RMDelete so because a children is not terminal, you can't ask for a cure? Get over yourself.
asapdiva 1 year ago