The faces of Mitochondrial Disease
Loading...
Loading...
6:49
Update: The Meaning of Mitochondrial Diseaseby mitoaction5,643 views- 5:40
Diagnosing and Treating Mitochondrial Diseasesby AkronChildrens1,435 views
- 2:08
Mattie Stepanekby tonewinwy21,439 views
- 1:04
Mitochondrial DNAby genetree8,198 views
- 3:27
Paralympian Joe Wiseby UMDF15,422 views
- 4:17
Mitochondrial Disease Patient Story - Cleveland Clinic Children's Hospitalby ClevelandClinic2,830 views
- 5:54
Living with MitoAction - Part 1by tehmezz2,308 views
- 3:15
An Adult Mitochondrial Disease Patient's Spouseby mitoaction2,278 views
- 4:11
ACG: Eosinophilic Esophagitis Advances Highlighted at ACGby MedPageToday3,703 views
- 3:36
Lily's Story - Leona Lewis "Run"by thelilyfoundation10,065 views
- 10:22
Tribute To Nathan, Our Little Manby JohannTodesengel7,411 views
- 1:30
Mitochondrial Disease Advocacy Speechby mitoaction5,688 views
- 4:17
I'm brianna coutureby bpookie159,362 views
- 4:09
Bonnie & Mitochondrial Disease (Mito).... 10/5/08by lynmarieco1,997 views
- 1:02
This is My Mitoby mitoaction1,383 views
- 4:06
Licence to stagger - Adults with Mitochondrial Diseaseby skubeedoo1,087 views
- 1:12
mitochondria ATP synthesisby biologyR120228,292 views
- 0:54
OHNC - Case Study 4 - Brain Injuryby OceanHBO987 views
- 5:20
Mitochondrial Disease | *Must See* Mitochondrial Diseaseby DuaneFaitel1,097 views
- 4:31
Asher and Jacob's Friends-The Riverby laurainsem4,365 views
I relate the most to you; being a Physical Therapist, administrator with seemingly unrelated symptoms for more than a year, I was misdiagnosed, treated improperly and patronized. Unfortunately for me at 37 y.o. I had catastrophic onset & losses including complete psychosis I was airlifted to Cleveland Clinic where they new better. My formal Mitochondrial Diagnosis didn't come for another 4 years. I have not been able to work since my initial onset. I now advocate for others groping for answe
wsmh20 10 months ago
my 2 daughters died of mito... i was in third world... u have no clue what i have been through... i am so sad and lonly. no one no one is telling me anything .... i wish u loads of luck and love.... may u live a ful healthy life and inspire others.. may we find mito cure in our lives. i feel out of energy all the time , no one tests me or tells me if i cud be mito......... hard life
lotusfaisal 1 year ago
@SalTaylor01 Uhgg.. psychogenic illness is 100% abused by docs! It means' they have no clue, but too arrogant to say so". It is insulting for them to even insinuate something as such. Someone that sees you for 5-10 minutes then comes up with such an absurd assessment without ruling out everything physical prior needs to get out of the medical field! I can only imagine many people go through life thinking they are nuts, because some doc labeled them as so. It is sad!
Melindaca2 1 year ago
For the docs who see clips like this please listen. We as patients have to deal with so much physically disheartening. Emotional stress from the medical community is not needed. We are not crazy, and must cope with our challenges of daily lives. Our looks may be deceiving, at first glance.
TheBlackberrybeat13 2 years ago
Thank you so much for posting this...I was accused of psychogenic illness and misdiagnosed with conditions that only accounted for specific symptoms. It led to 17 unecessary neurosurgeries which took me from a symptomatic patient to bedridden on oxygen. I am recovering more function now that I am being managed appropriately but my heart breaks for those that are still undiagnosed!
Sally
SalTaylor01 3 years ago
pray........you are awesome!
jacobharm1 3 years ago