NF Team Carter Movie
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Uploaded by NFteamcarter on May 12, 2007
This is a video for our son Carter who has Neurofibromatosis along with Optic Glioma(Tumors on his optic nerves)
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My 2 yr old niece is currently undergoing chemo, her 10th treatment of 66 thus far.
Thanks for the inspiring video.
reneed70 3 years ago
Very good video.I have a NF.Good luck For all people with a neurofibromatosis
vilainpetitcrapaud 3 years ago
Been there felt that. Especially since I am the only one in my family to have it and some of my family members have treated me like crap because I do have it. It may not get easier, but life is all worth it. We have to stick together and get teh word out about it. I'm now 31 and again like when I was a child I'm going through a battery of test and seeing countless doctors, but I thank God that I'm alive and here to experience what ever comes my way.
jetsfan4life 4 years ago
I know some of the things you're going through. I have NF also and growing up having it wasn't always easy. Just hang in there though. If you need anyone to talk to just reach. I'm here to listen.
jetsfan4life 4 years ago
i meant 6 months
brianlease 4 years ago
awsome video....my son Noah has been in chemo for 20 mth now with optic glioma.
brianlease 4 years ago
This video is beatiful. it made me cry. Congratulations. I am a president os a Brazilian Association for the NF and my son is 32 years old and has NF. We are looking for a cure and I hope and we will.
efb1945 4 years ago
I am 14 and I have NF1 it has hurt me alot but what mostly hurt me was that i thought that I was the only one who had NF and that I thought i had to face this disease all alone with all the shots,tests,and count less MRI's but up to a few weeks ago I learnd that i am not the only one who was facing this disease and that many people have it.(Togeter we are strong Togeter we will find a cure)
kirb784 4 years ago
I am 11 years old and I am currently a patient at Chinldren's Hospital of Philiadelphia because of Optic gliomia. And it's not fun stuff. Surgery. Medecation. MRI's. Constant blood tests. And the worst part, living the reality of my disease.
puppyeyes1996 4 years ago
good luck for the future, i also have nf type 1
glad to see more people doing videos on this genetic condition
babycham2006 4 years ago