Born with a Broken Heart - living with congenital heart disease

A Canadian Congenital Heart Alliance video to raise awareness about congenital heart defects and the need for improved resources and care for adult patients.

Category:

Nonprofits & Activism

Tags:

• movie film
• congenital heart disease
• congenital heart
• CCHA
• Canadian
• CHD
• broken
• heart surgery
• open heart
• pacemaker
• adult
• congenital
• heart
• disease

[cchaforlife]

Thanks for the feedback! Cardiologists are just beginning to notice a steady stream of young adults with CHD. When I was born in the early 60s only 20% of us survived, but now it's 90%, and the population of "survivors" will keep on growing. Many "regular" cardiologists just have one or two CHD patients and figure they know what to do, until something bad happens. We're trying hard to raise awareness among the cardiologists that adult CHD patients should be seen by adult CHD specialists.

[cchaforlife]

Hm, try turning up your speakers. The sound does work.

[krommydos1985]

Great job!

love from Athens, Greece.

PANHELLENIC CONGENITAL HEART DISEASE ASSOCIATION

[technogeek1964]

Fantastic video!

I am also a CHD patient from the UK. TGA, VSD & PH.

I also hope that this brings better funding to CHD (GUCH)

[LilyPearls]

@technogeek1964 I have the exact same diagnosis! Woo hoo!

[lcb514]

Great Job!! Alot of people in the USA should watch this! I have been followed since birth..but at eighteen they felt I was "Better" but now that I am older the doctors were trying to treat me like a "Normal" patient and were not listining to me until another doctor said that I had a heart problem. that when they started to listen..

[RockPrincess102]

I can't hear what they're saying

[VacationDisney]

Excellent video! My daughter is 17 and having a tough time being positive about her CHD. TGA, post-fontan.

She is very angry. How do I help her? Sandra

[Suki278]

Awesome video! I'm definitely e-mailing a link to it to all my friends.