2nd to last sub-q

I was diagnosed with common variable immunodeficiency on November 6, 2006 and have been in treatment ever since. I will receive my last treatment on April 26, 2009, and am pretty excited about it. In this video I walk you through my weekly treatments and explain a little more about my immune system defect and what all that has entailed.

Category:

Education

Tags:

• primary
• immune
• deficiency
• immunodeficiency
• common
• variable
• system
• sub-q
• IVIG

[battlekid90]

hey i have agammaglobulinemia ( a form of immune deficiency ) and im running off a port on my upper right chest at the moment ..but because im a firefighter and and the air packs we where are always pushing down on my port makes it really uncomfortable ...my doctor says that i should go to sub q .. for a few reasons ... my levels would be better, its less time consuming , and it wouldn't interfere with my job as much .. what did you think of it ? does it hurt ? how big are the needles ? Thanks

[hopechangesthings]

about 5 months after this, my immune deficiency came back. i chose to have a port put in and get IVIG every 4 weeks. like tinmanlover1994 said, how bad it hurts depends on where you put the needles - the more "extra padding," the better! the needles are only about the size of thumb tacks, so they're not too intimidating. i like IVIG better because rather than not feeling well for 3 days out of the week, it's 3 days out of the month. i think it all depends on personal preference though.

[MamaFox79]

@horsegirl35474 are there still support/communication type groups online anywhere? My mother, aunt (both passed away), sister & niece all had/have CVID. I am trying to get the word out to more people about CVID as it seems many people are misdiagnosed. My dr did not know what it was. The communication/support type sites I have found so far do not have any current communications

[horsegirl35474]

I was diagnosed when I was really young. I used to go to the hospital once a month to get IVs but now I do it at home I've been doing it Sub-Q for close to seven years and I started sticking myself four years ago. I don't think I'll ever get to stop doing it but at least when I do it I can be at home and not in a hospital. I also love it because my dad just started doing it this year 2011 and so now we use that time to bond.

[MDF12]

I'm preying and sending it to FB for them to prey too. God can and will heal you,so. believe it ,ok by HIS stripes we are made hole.Again

[Arlo221122]

I have CVID and have chosen ivig every 3 weeks. Definitely more invasive, but I LOVE not thinking about it for 2.5 weeks in between infusions. But, my veins aren't great so I'm think about a porta-cath t make hooking up easier.

[tinmanlover1994]

i was born with no imonie sysitem and the anut abodys i have are dead so i get subq it has been almost 2 years sine i started subq in december 2008

[tinmanlover1994]

@battlekid90

you can put the needles in 4 parts of your body

1.the tummy

2. the place were you get a shot at the DR's

3.the pace in your leg were you get a shot at he DR's

4.below on your backside a little bit B4 booty

but the best place to do it is ware you have the most fat on your body of the 4 sopts

[EinaudiRulez]

I'm 13 I was diagnosed with CVID when I was 10. My 1st treatment of IVIG was almost 3 weeks ago, but since the treatment's started 2 wear off we might have to do the infusions every 3 wks instead of every 4. The reason why I'm watching this is b cuz I've got very pour veins so when the nurses at the outpatient center aren't able to access a vein 2 start the IV anymore & since my immunologist doesn't think a portacath would be a good idea then I'll probably switch 2 sub-q=)

[keeliey1]

I have never heard of anyone ever being "cured" of CVID. I have CVID and subcutaneous or IVIG is a lifetime thing.

Stay Strong!