Kendall's Craniosynostosis Story
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Uploader Comments (mtguardanapos)
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Please excuse my ignorance, but I was under the assumption that this had to do with a misshapen head? Your daughter's head shape before surgery appeared "normal"...Were there other signs? Is this even what Craniosynostosis means? Thanks!
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Thank you for this precious video. It gives me hope for my little boy who is going to be operate soon.
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and 2.55
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i love the pics 1.04 and1.11 and1,15
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My daughter had surgery for her cranio at 6 months old. She'll be 7 in two weeks and is gorgeous loves to show off her scar and tell people about it. She thinks its awesome. wish i would have seen vids like thisbefore we went through this.
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Thank you for posting this video. Our daughter was just diagnosed with this recently and she is 2 months old. I never heard of this before her being diagnosed. Our daughter is also going to have the surgery within the next month. This is very hard for us but seeing a video like this gives us hope for her future. I wish you all the best, your little girl is lucky to have you both.
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I had never heard of the condition myself before my son was born on 10 24 08 he had the surgery when he was a month old-hes amazing-and apparently so is your daughter!
gl guys!
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she is the most precious thing in the world
she is beautiful god bless her
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The needed to remove the fused bone and reshape her "keel"(boat) shaped skull to a more round shape. (Cranial Vault Reconstruction). The main signs were the ridge and the fact that her head circumference basically didn't change from birth, and the boat shape. I thought she was perfect...a mother's love is blind they say. :) She's doing so great now! I will post an update video soon! I'm registering her for Kindergarten soon! CRAZY!
mtguardanapos 2 weeks ago
Kendall's head certainly appeared close to normal when she was an infant as she had a mild case. However her sagittal suture was fused meaning her head would continue to grow long and narrow, possibly inhibiting the growth of her brain and causing intra-cranial pressure. She had a ridge along the top of her head (front to back), a "bossing" forehead and very narrow occipital bone (the back of her skull fit perfectly in just the palm of my hand, it was so tiny.
mtguardanapos 2 weeks ago