{Infantile Spasms} West Syndrome Awarness Video

The amazing little girl in this video is Carolina,she has West Syndrome.
The reason I made this video is that before I got to know about Carolina I had never heard about West Syndrome & didn't realise that such a thing exsisted.
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Infantile Spasms/West Syndrome

Infantile spasms may begin up to age 2, but most commonly begin between the 4 and 6 months, with about 90 percent beginning in the first year. The causes are widely variable and in some cases are unknown. However, the most common causes are tuberous sclerosis and perinatal asphyxia (lack of oxygen).

Parents sometimes attribute the cause to pertussis vaccination, a connection that has yet to be proven. Since the peak in onset of spasms occurs at the same age range that the vaccination is given, it is likely that the concurrent timing is the only link.
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Please visit the Epilepsy Foundation for more information:

http://www.epilepsyfoundation.org/about/types/syndromes/infantilespasms.cfm

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[colleenknight26]

MY SON WAS DX WITH SPASMS AT 10 MONTH OLD BUT STARTED LONG BEFORE THAT HE STARTED SHOW SIGN OF SEIZURE IN NICU ... HE PASSED AWAY AUG 7 2011 AT THE AGE 19 MONTH OLD DO TO SEIZURE THAT CAUSE HEART ATTACK AND STOP HIS BREATHING .. HIS DEVELOPMENT WAS JUST LIKE NEWBORN BABY .. HE HAD FEEDING TUBE AND O2 .... ETC...... :(

[kckhalid1]

hi i am from nepal and my boy is having a seizure also. he is not following light and sound. i dont' know if he would be okay or not.. or what will happen to him in future. i am so worried.

[XDinexitaXD]

@midlandinns I cannot see the whole story, it doesn't appear.. I am so, so sorry that your little boy passed away. He'll always be in our hearts.

[XDinexitaXD]

@sjoeleo2 thank you so much. that gives me so much comfort. Carolina's not doing good at all but we'll still be praying for a miracle to come. We believe in her.

- Carolina's cousin.

[midlandinns]

RIP Sid Carroll 02/09/07 - 17/06/09 see sidcarroll com not just anyone he's my son.

[djsilbs42]

My infantile spasms 'baby' is in college making straight As. There is always hope. What a overly child you have.

[djsilbs42]

@mom2ericnb

That has been disproved over and over again. No serious researcher into IS takes that seriously.

[savera777]

@sjoeleo2 i found my baby boy having this west syndrome only a couple of weeks ago. he is under medicaiton now. but lots of question are hunting my mind. is your boy okay now.? is he like other child? please give me more information so that i cud help my baby. now he seems lost in his own world. he cudn't raise his head. and he doesn;t follow light and sound whereas his VEP and AEO reports are alright..

[sjoeleo2]

My baby boy Leo had inantile spasms at 6 months back in Aug 2002. The seizures lasted for 1 month. The Neurologist put him on a med called Zonegran. We were told he had a 15% chance of coming out of this syndrom. He is now in the 3rd grade in reg school. He is a very happy child, very Hyper, but he cant stay focused. He thinks out of the box and comes up with some things that make you laugh. We love him he is our world. Our prayers go out to your family and your child.

[mom2ericnb]

The seizure activity in children is definitely attributed to vaccines, especially the aluminum in them!