A short CFS documentary

A short documentary piece about a girl who lives with severe CFS/ME (chronic fatigue syndrome/myalgic encephalomyelitis) confined to her bed. Found on the Invest in ME website (I think). Note that in the worst cases CFS/ME can get so severe that the person is essentially paralyzed, has to be tube-fed, cannot speak and cannot even tolerate any light or sounds.

I have written a book about CFS/ME/FM treatments titled "Reviving the Broken Marionette: Treatments for CFS/ME and Fibromyalgia". It features over 250 medications that can be used to treat these illnesses. For more information see http://www.brokenmarionettebook.com

Category:

People & Blogs

Tags:

• cfs
• me
• chronic
• fatigue
• syndrome
• myalgic
• encephalomyelitis
• documentary
• bedbound
• bedridden
• illness
• disability

[wizardscar]

We've just started a project trying to raise some awareness for M.E as so few people understand what it is.

It's up on our channel - it'd be great if you could all go and have a watch and subscribe and spread the word.

x

[audrig111]

@ohpleasereally you are an ass! you have no idea what this disease is like. Since you dont know what is, you think it can only be be some form of hypochondria. I HATE how self-righteous people like you are - you really think you know everything, don't you?

[super07socks]

i just got diagnosed with M.E and this video has made me very scared

[SparklenShineStudios]

Touching story, and what an amazing and supportive family! I wish there was a permanent solution for ME, until then, all the best! <3

[bigblindray]

@supahfreeak I really do hope you overcome your illness. My Partner has been suffering for 7 years now. Its great when people get through it but the reality is that there is no proven cure and treatment for the condition. Scientitsts dont even knwo what causes it. it is still all therom and speculation. Hopefulyl raising awareness will help raise funding into further research. Best of luck.

[2136cass]

Hearing about this young woman's energy deficits, two words pop into my head: Mitochondrial disease! Although there's no cure for mito dx, there are supplements which can help improve symptoms and even help w/ energy levels. If you have CFS/ME w/ no known cause, please investigate mito disease. It took my family over 20 years to be diagnosed, but we are FINALLY seeing some symptom relief using mito supplements. Praying for all affected w/ mito, CFS/ME and all invisible illnesses. God bless.

[supahfreeak]

for other people with cfs i really don't think they should make documentaries like this. I am only 19 and have had this for four years and I really am trying to keep hope and never give up as many people should. I feel really sorry this person/relate to her. But it really makes me lose hope. I wish they could post documentaries where they actually are treating and helping people with this. Or success stories of people who have actually overcome this

[dannypercival]

@babysmudgeiloveu . Don't be offended, I didn't mean the illness, I meant the documentary, it looks staged, performed, amateur, do you understand? I'm sorry for anyone with this illness, truly I am. I don't however feel sorry for the production team of this short film. Is that OK for you.

[babysmudgeiloveu]

@dannypercival how does this look fake, until u go through it u will never no

[dannypercival]

it looks fake as fuck!