Polycythemia Vera

My brother undergoing his monthly procedure. He's not alone, many have to pay the cost to be the boss.

Category:

Science & Technology

Tags:

• Polycythemia
• Vera
• Survival
• patients
• Doctor
• Phlebotomy
• blood
• cells
• disease
• nurse
• pressure
• wegener's
• granulomatosis
• wegeners
• surgery
• cancer
• cures
• cure
• clinic

[quo117]

i see i am not on my own, i go through this once a month, diagnosed with PV in 2007, still going strong, keep on rocking..........

[bigdave8907]

@quo117 You are def not on your own. Thank you for commenting. U Rock !

[unclerandy13]

I LOVE THIS! Was diagnosed nearly 3 years ago after suffering a stroke! My first few phlebotomies looked liked they were pulling cocktail sauce out of my veins! Had a hermadacrit count of 71! So everyone else with this DAMNED problem,..... I love ya,& remember... We're all in this thing together

[jannesfan100]

hello sorry for my bad english, my husband also has pv (blood cancer) and he is dying of it, he has diagnosed 1 year ago,and since then he's just sicker; he gets hydrea medication, but his blood is not under control, he too has had phlebotomies but there they stopped, I regret that so little is known about pv for you and you feel all alone stands for, my husband is now 60 years but it looks not good. dear greetings from Netherlands

[micinum]

I have that too....they take out 350ml blood every 3 months and that is it...but I do smoke and im not very sporty and I also drink time to time..but drinking actually makes blood thinner so...

[sourmanofcoal]

@bigdave8907 Did your brother drink alot of alcohol? Or did this condition just arise suddenly? Just trying to find out what could bring out this condition, I'm also aware that genetics plays a very important role.

[sourmanofcoal]

@shaynehart1 Could you please let me know why you're on interferon, traditionally people with PV are given hydroxyurea pills. Let me know why in your case they thought interferons are best.

[shaynehart1]

Hey there, I was diagnosed with PV nine years ago. I am a 38 year old female, living in Canada. I go have phlebotomies about once a month. I am having one tomorrow, actually and was planning on taping it! LOL! It's great to see other people out there, who are going thru the same thing as I am. I am currently on Interferon, to control my PV. The side effect are nasty, but it's workin, so we're going to keep on going :)

[princesscaesar]

i was diagnosed at 11 with polycythemia vera ( im 22 now)..... and they did this every other week for about a year but mine would come out in that jar in literally clumps it was nasty lol i still have it done alot ... but now they say instead of doing it this way they can hook u to a machine that filters it out and puts the good cells back in ... havent had it done yet but good luck with everything and know ur not alone! have a good day!