2.5 cm Acoustic Neuroma - Postop 16 months

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Category:

Education

Tags:

• acoustic
• neuroma
• brain
• tumor
• surgery
• neck
• pain

[brasukart]

My wife had terrible pains 6 months after the surgery. It was unbearable, moving from her neck, to her head and around the eyes. Neurologist didn't know what to do either. BUT we decided to use towels with HOT WATER and the pain was at least finally under control! Then we started visiting a physiotherapist and he diagnoses that the paralysis andsurgery damaged the neck muscles. These muscles compressed nerves that cause the pain. It's been 1 year, there is still pain, but improving!HotTowel

[darnett]

Good to see you improved! I had an acoustic neuroma partially removed in January of 2011. I know what you have gone through and find your videos encouraging. Good luck!

[Simp44]

I had Retrosigmoid in early April of this year.I have the usual hearing loss,dizziness/vertigo(my face is OK) but now the worst part is the excruciating neck/head pain.I tend to avoid pharmaceuticals but I'll have to try the one you mentioned.

[caroantonie]

Hi Jhonny. Do you remember? I'm Carolina from Chile and i fell happy for see your advance. I removed 3 year ago acoustic neuroma 3 cm diameter. I feel the same feeling in my neck, but with the time it will become less. I Have a great family and friend for help me. Now I work normally and life goes on.

[Seracinfinity]

I may have one and I am seventeen, how traumatic is it?

[georgiamei7]

Thanks for sharing. I had a 3.2cm R-sided AN removed 3/08 and have also had a nasty headache since then. My surgeon said the same "the pain doesn't happen" and I had one (of many) pain specialist say that post-craniotomy pain resolves in 3-5 years (spontaneously) for 80% of people with chronic daily headache. They also said the paralysis would not improve after 1 year, but it definitely continues to improve 3 years out. It's small but wonderful improvement! Have you tried Botox injections?

[Simp44]

Right on,you're looking great.I'm glad your neck is getting better.Mine is pretty sore two days out but It's actually been worse.I'm not on any pain meds at the moment.Thanks again for the video the support we can give each other is great.I also have great friends & family around.I don't know what I'd do without them.

[dianalavona]

I'm so glad you're able to kiss your wife again :)

Thank you for sharing your story, my co-worker has just been diagnosed with a 4cm

AN and I'm just trying to understand more of what he's dealing with

[jett330]

@MerrySexton424 I had 4 surgeries for my nueroma, its still hard for me sometimes but reading your positive attitude is really great! my face is not back to normal yet and its been over a year, but slowly its getting there and my paralysis is permanant too! nothing is permanant.

[duckft87]

please tell me where you went for sugery? no one ever seems to say where they went for sugery. i'm waiting for an appt. at the mayo clinic...hopefully it will be in the next 2-3 weeks.