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Uploaded by on May 23, 2008

My son Riley's video for Boston Children's Hospital event. He was born December 3, 2005 and had open heart surgery when he was 4 days old.

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  • Love you Ry<33 i miss you so much

  • We are from the Pittsburgh area. My son is now 4 years old. He was born with HLHS. He has had all of his surgeries thus far. the first song he heard when he was in ICU was the Victory March. He watches Rudy constantly. We are hoping to take him to his first Irish home game in the fall.

  • My wife and I are 21 weeks. Last week we went in for the 20 week check-up, ultrasound.  We have just learned that our baby has a TGA and VSD. We're scared to dealth. This is our first child. Any info would be great. We have no ideas what is to come. Or what to expect. Thanks and your son looks great!!

  • I had surgery on my heart when i was like 2 weeks old, when I was strong enough I was 2 pounds. I was born with coaraction of the aorta I had to have a full blood transfusion, I am very lucky and so is your son, I was baptised in the hospital they thought I wasn't going to make it. I have an indentical twin sister we has twin to twin transfusion syndrome I was the samller baby

  • im so happy for you he made it ! my daughter died when she was 2 months old she had truncus arteriosus... and i know how hard it is to go trough this as a parent

    god bless Riley and his family, he is really cute !

  • riley is the man

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