lupus blog
Loading...
Uploader Comments (russellbar01)
All Comments (15)
-
what your saying is what I live on a daily bases and my work don't seem to get it
-
hi
-
Some of those millions of dollars that are wasted, ridiculously spent for a pompously vain display of a wedding out there, should instead go to research for a cure for illnesses like this.
Keep the faith, bro!
-
This is a pleasant, encouraging vlog - thanks for posting. The way you got diagnosed is amazing!!! It just boggles my mind. Hope you're feeling good today.
-
Mr. Bar, Your blog hit a nerve with me, while I watched you explain your symptoms...nice work! I am also a male who was diagnosed about 5 years ago with SLE, and you are absolutely right about sun exposure. I used to enjoy not worrying about walking outside in the sunlight, now I cover up and it is different. This is the first time that I have seen another male lupus patient speak. Thanks for talking to us about this struggling condition. Read about Lucy Vodden, a.k.a. Lucy in the Sky
-
Hey I am listening to you again....I totally identify with you......Have a good day:-) You are a nice man indeed..Love your accent:-) xo
-
Hi nice to see an english blog about lupus i was thinking of making my own, im 29 female, ive had lupus since i was 13, and also had 2 DVT's both in my left leg 1st one came out when i was 17 and the 2nd one last year, so im also on a dose of wafarin, alongside the plaquinil and predisalone, the dr will be starting me on methotrexate at the end of this year too, im going through a flare atm so im off work until futher notice, work have been great with me but i may need to give it up take care xx
3 years ago 2
- 4:04
The 5 Stages of LUPUSby ajsmommy34,063 views
- 5:59
Living With Lupusby ToiTroutman3,990 views
- 7:23
This Is Lupusby LupusFoundation176,753 views
- 4:30
Lupus Symptoms Videoby asktheholisticdoctor17,988 views
- 6:37
Amy's Lupus updated 2009by AmyTx3,373 views
- 7:49
Living with Lupus (segment from Set It Up, SPNN's teen-produced TV show)by LupusFoundationofMN762 views
- 6:43
Life with Lupus (Part 3)by LupusNY3,365 views
- 8:46
Viewer Challenge. The Steroid Effect: CTDs, Lupus, Crohn's, Etc...by Michellemlm3,585 views
- 4:41
Presley - Battle with Neonatal Lupusby jennnnn523,047 views
- 3:33
lupus-vocesby naujbinladen4,559 views
- 6:06
The Faces of Lupusby rhalper5,331 views
- 5:55
Target Awareness: Learn about Lupus and Resources to Help Those Affected by the Diseaseby LupusFoundation123,989 views
- 5:10
Lupus and methotrexate part 8by iseedeadmonkeys338 views
- 2:41
Lupus - A True Storyby sk8erhawk26,758 views
- 5:33
Amy's Lupusby AmyTx3,423 views
- 2:51
I MISS MY MUM ..by Smigget3,968 views
- 4:48
Lupus LA 2008by LupusNY4,756 views
- 2:33
Lupus Fighterby bigsanfer3219,248 views
- 4:58
New York OB-GYN Dr. Jacques Moritz discussing lupus diseaseby brooklyndavid7,634 views
- 4:44
Living With Lupusby LovelyLupie836,089 views
Very inspiring...loved the fact that you are there to support your children. It shows we can be ill and our kids still need us and to be there for them is great!I respect your strength. Some people give up on family.I loved listening to you ...It was very touching yet gave me hope--improvement...Thanks much
Juanita767 3 years ago
Many thanks for your feedback. Really hope you improve and things turn out okay for you.
russellbar01 3 years ago
God Bless you sweetie...I was there..constant pain..The doctor's are so annoying! You know more than 99% of the Doctor's do! We all need to unite in a HUGE LUPUS rally and let them see that we are normal!! Please Please email me. I am going to make a HUGE differance for all of us!! God Bless and Hugs sent your Way...XXOOXX Josie Kay
ajsmommy 3 years ago
I wish the benefits system could see it like you do. I am currently trying to do some work. 20 hours a week,not entitled to any payments. Over 16 hours is full time to the system. so how do i live on that.
russellbar01 2 years ago