Hereditary Spherocytosis: A Patient's Journey

Ezra, age 6, suffers from a rare hereditary disease, spherocytosis, which leads to severe anemia. When Ezra was born, his parents were told he had less than two weeks to live, and blood transfusions saved his life. To learn more about HS and other blood disorders, visit ASH's patient resources webpage http://hematology.org/Patients/.

This clip was excerpted from the documentary film "Blood Detectives." To learn more about the film, visit http://www.hematology.org/Publications/Blood-Detectives/5246.aspx

Category:

Science & Technology

Tags:

• spherocytosis
• hereditary spherocytosis
• HS
• anemia
• blood transfusion
• blood transfusions
• blood
• hematology
• blood disorder
• blood disorders

[LeeaSmith123]

I have Hereditary Spherocytosis, I've never had anything that bad but I am always jaundice, some days worse than others, I've had a haemolytic crisis, 2 blood transfusions and 3 gal stones which they will probably remove along with my spleen if the condition gets worse.

[Stephanie81104]

thank you for this video

[Dazed767]

I had my spleen removed 10 years ago and the 10.5 inch scar to prove it haha. I constantly get sick, I feel like I'm living on antibiotics all the time since I can't kick most sickness's my kid brings home.

[dapimppope]

Seems like he had a serious case of hereditary spherocytosis. I'm a victim of the blood disorder also. Went through only one blood transfusion which lasted for 2 years. At the end of that 2 year period, I got my spleen and Gal Bladder removed. The Gal Bladder was removed because the destruction of the red blood cells formed into Gal stones. Funny thing is, I've never gotten a flu sickness that involved throwing up and I've gotten over cold faster than a normal person for 6 years since surgery.