2009 Muscular Dystrophy Documentary
Uploader Comments (jcksrk)
All Comments (24)
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hi i am not quite sure about if i have Limb girdle muscular dystrophy or DMD.
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Hi my name is Marcos Paulo.I'm from Brazilian and I have 29 years old.
I have DMD how a lot kids by world.
I'm very thankful by care and kind that my family give me,It's very important to whow have this disease the support of the family.The love is the best medicine to these kids.
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Hello i have just launched my Muscular Dystrophy forums/site, i intend for the community to grow at a good rate once i get the word out.
I am going around on youtube and attempting to contact everyone with md i can find to try and grow the community, i know i have been looking for decent forums for years.
Matt
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equipment is free in Australia for disabled people
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when I get depressed I think of heaven, hi I have dmd n I go to a MD camp in Australia
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I have it, hence my youtube name, im 12, and i live a pretty normal life, i can walk, run(not very far though.), and i take prednisilone tablets and cal-chews. Im going to the the action duchenne conference in London!
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My heart goes out to every single parent out there with a child with DMD. My 3 year old baby was diagnosed with it at 11 months of age. If it wasn't for my faith in Jesus Christ Our Savior I don't know what would it happen to me/us.I pray every day for the end and the cure of this disease. Please,know that you are not alone.
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@color57 Hey there, mate. Like the other person said, please don't lose hope. Improvements to treatments, etc, are being made all the time. Even something as simple as the breathing apparatus helps out by preventing hypoxia. I've worked as a carer for those with MD and a couple I know of were in their forties and fifties. They're still alive, too. So, yeah, please don't lose hope...
Please make comments on video. Made when I was 18 years old to help others know about this rare disease that has no cure. Help tell people with Muscular Dystrophy you care, comment on the video, or if you have MD comment you have it and what type.
jcksrk 2 years ago