Introduction to Friedreich's Ataxia and FARA

An introduction to Friedreich's Ataxia and the Friedreich's Ataxia Research Alliance (FARA) as told by interviews with patients, families, researchers, and FARA employees.

Category:

Nonprofits & Activism

Tags:

• Friedreich's
• Ataxia
• Research
• Alliance
• FARA

[Mesquissto]

I think one of my biggest problems with this disease is how inconsistent it is. I'm glad not everyone needs a wheelchair within 5 years of diagnosis.. but sometimes I hate that they don't have another name for people who have a more advanced case.

Good video anyhow, I shed a tear. I do hope I am cured before I die.

[sp0rk6]

awesome vid!

my best friend in the entire world has FA.

i hope she can live to be a ripe old age [:

[KieranSC91]

I have Friedreich's Ataxia, stay positive and keep strong! Hopefully a cure will be found soon!

[haluakhan]

1 OF THE LADIES MIGHT HAVE GRAVES DS

[haluakhan]

LOVE ALL OF THEM WHO LOVE THEIR CHILD.......I FULLY UNDERSTOOD THEIR FEELINGS AFTER MY SON WAS BORN.....

[1111serina]

3 of my brothers are diagnosed with this disease but they are all very strong, i hope a cure turns up soon so they can live their life freely and happily

[aclloydz]

@Mesquissto I hope you become cured with all my heart and intention. Much Love!!

[RobynWishes]

My best friend has FA. she is a beautiful caring girl and, knowing that she doesn't have much longer to live really gets her down. my mission in life is to try and keep her going. i love her. dearly. i also have a disability. ehlers-danlos syndrome, but then we have someone who understands each other. If someone is having a bad emotional day, because of what they have to deal with, or if there having a bad physical day. we are there for each other. all day every day.

[RobynWishes]

@sp0rk6 same. she is a beautiful caring girl and, knowing that she wont have much longer to live really gets her down. my mission in life is to try and keep her going. i love her. dearly.

[ramonesprincess]

@carmenccutler

hi my name is isabella I have a similar disease I can give you information on treatments i have tried Can you give me your email address so we can get in touch?

[carmenccutler]

My best friend in the whole world has been diagnosed with this for years. She has recently had a new development, and is in terrible abdominal pain all of the time. She lives is Leesburg, FL, and is getting virtually no help from the physicians she is seeing. None of which seem to have any real know how to deal with her disease. Can anyone offer any advice? I live in MI, and I am doing all I can for her from here, but I need HELP. Anything, I will take anything!

[bofliqe]

God

made me cry